Just wanted to give you a quick update because I don’t want any of you to worry about me. I am still at the palliative care center in Paris. ALS is giving me a good fight right now. Unfortunately, I cannot hold my neck up very well, I cannot swallow food, and my voice is very weak so I cannot do the blog (Gracie is typing this for me) … Oh, and I shit my pants every day this week. So, my world is a little rocked right now.
I hate 90% of the staff here because they are stupid and if you don’t believe me, I invite you to spend a week here. Let’s see, where should I start… Nurse Francoise told me to stop talking to her but I explained to her that I was talking to my computer, so she decided to close my feeding tube with the back of her clenched fist. That is how the week started and ended with two psychiatrists trying to medicate me against my wishes. #BitchesWithAnOunceOfAuthority
There are some nice nurses like Nurse Sophie, who kisses me every time she leaves my room. Then there is the big nurse named Yolande… who we will obviously love just because of her name. There is a 26-year-old nurse who is in charge of 13 terminally ill patients at night and the funny thing is she has more competence and better bedside manner than all of the old hag nurses put together. I also like the chief of nurses, Nurse Bernadette.
BUT THAT’S IT. The rest are bitches. I will be leaving the center this week to move into an apartment to see if I can gain my strength back. All of my caregivers are back, because it turns out they just hated Provence. My sister, Heather, and my mother will be here within a few hours. I’m not promising anything but I will try for the next month to live the best life that I can. Hopefully it will be filled with flowers, gardens, churches, chocolates, and perfume because after all, it is springtime in Paris.
I will not be able to write the blog very much, if at all. However, follow me on Instagram for daily updates because I will eek out enough strength for that.
Follow me on Instagram HERE
The good news is that because my mother is here to help me, the shop is still open. Not sure if I will be able to do the shop in the future so shop til you drop.
Gracie is helping me finish the book and I promise it will be finished by the end of April.
Thank you all for your well wishes, prayers, and love. I can feel all of your warmth.