Good morning from Paris. Today some thank you's are in order... Thank you's to all of you. As I am winding everything down, all I can think of is all of you. I have read every comment and every email and I am just gobsmacked by all of your well wishes, kind words, prayers, advice, donations, personal stories, and LOVE. Gracie, the brat, always teases me that my blog readers are my imaginary friends. However, I think you are quite the opposite. Your generosity of heart has gotten me through some very dark days... Like yesterday.
Yesterday afternoon my ALS doctor paid a visit to my apartment. Doctor Meininger has been my doctor since the beginning. After I was diagnosed with ALS in New York, I immediately flew to Paris to see Doctor Meininger because he is the foremost specialist in the ugly world of ALS. He has seen me go from walking to 100% paralyzed. Because this is Paris and a civilized city, Doctor Meininger arrived to my apartment to have a chat. After an espresso and a quick evaluation, the kind doctor looked me in the eyes and said, "You, indeed, are at the end of ALS." The only thing I could do was laugh and think, "Well, that's not something you hear everyday."
I spent the rest of the afternoon looking out the window because what the fuck else was I supposed to do? Do you know what I thought of? I thought about all of you. I thought about all of the compassion you all have shown towards me. Truly, I did. I pushed aside all of my other current worries and tried to focus on something positive... All of you.
Through these years with the blog we have been through a lot and have supported each other through every recipe, every design disaster, every Parisian flower shop, every Provencal village and every heartbreak, heartache, and emotional crisis and meltdown known to mankind and every time we were there for each other without fail... And for that, I would like to thank all of you.
Even though my current health situation does not allow me to respond to every email or comment, I want all of you to know that I have heard you. I wish I could reply to all of you personally but I just cannot so here I am thanking all of you the only way that I have left... Through the blog. My thank you's are to each of you personally and I send to each of you a big fat sloppy hug and kiss.
You know, women (and Stephan) are truly remarkable... Definitely the more evolved species. Women have the capacity for true compassion and for that I am grateful. All of you have enriched my life more than you could ever imagine. We have laugh and cried (and judged) with gusto. My life is truly better with having known all of you.
So...
MERCI BEAUCOUP FROM THE BOTTOM OF MY HEART!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Stay tuned for the next blog... My most exciting blog yet... The launch of my book! Can you believe that I finished it! It will be available on Thursday through the blog. Thank you for your patience and support. Love to all of you...
One more thing... I have had been asked by so many of you if I could give out my address so you could send cards and I have always said no because David wont allow it in case some of you want to murder me but I don't care anymore so here is my address...
Eleanor O'Connell Decret
16 rue de Montpensier
Paris, France 75001
Cards, flowers, cookies or murder... your choice. Thank you in advance.
💕💕💕💕💕💕
ReplyDeleteEllie, your blog made me pull myself out of a slump and starting living my life more fully and appreciating what a gift I had. You are remarkable and all of your readers have you, David and your beloved Gracie in our hearts and prayers. Thank you, dear Ellie, thank you.
ReplyDeletewe love you and the brat Gracie and if she ever needs any of our help I hope she'll know we are,
ReplyDeletefor the most part, not imagined and are here for her too.
You'll be with me every time I shovel butter and carbs into my grocery cart and when I step back to look at floral arrangements in progress, admiring their beauty but with a critical eye toward improvement. Just as you've been since I started reading. Love you
Omg the address was added since I was here this morning. I'm going to send you a male prostitue. He may also murder you but that's not my intent so if does I'm like SO sorry but I promise he'll have a nice ass.
DeleteWow! I dk what to say.... I dk what to think of you... What kind of person are you? I dk the answer, I dk you but My God you can move me and make me a better person, and I dont' even know you, funny? You are such an amazing person and I wish and I'm sure most of your followers will love to have meet you. You are the friend we all want! I'm looking forward to read you soon again and to buy your book. Where do you take that courage? I would like to know LOL. I'm sitting here having my coffee this morning and looking at the "Chateau Frontenac" on that beautiful sunny day here in Quebec city and I will think of you and send you positive vibes! Love u Ellie xoxo French Girl from Quebec city
ReplyDeleteDear Ellie,
ReplyDeleteThank you for everything. Thank you for sharing your gut wrenching story with me. Thank you for bringing us all closer in this huge world. Thank you for sharing your gusto for life with me, bc that is something I truly needed. You are right, I think the blog world is full of compassion, a lesson I'm so grateful to learn. It is the one amazing bright spot of dealing with a child in addiction. I no longer judge anyone for anything. You are a beautiful beautiful person who is quite real to me. x
Thank you Janet for directing me to this blog, because I've read every post and luffed it.
DeleteEllie, I will think of you every time I look at my copy of the Finest Houses in Paris which I keep on my bed side table.
I cannot bear it that this post could be the last. xxxxxxxxxxxxxx
Ellie THANK YOU. You've given us so much, your feisty spirit and sensible and correct advice on living The Good Life, I feel like a big fat taker. You're so generous Ellie. How many times have I said to myself WHAT WOULD ELLIE DO. And then I proceed. Can't wait for your book and I hope they printed lots of copies. Love you Ellie. XOX
ReplyDeleteEllie, you are widely and truly loved, because of your heart and your generous spirit; we are all supporting you and loving you every second - never forget!
ReplyDeletesloppy hugs and kisses back at ya,
Janice
Peace and love
ReplyDeleteSusan
Thank you for chronicling your life. You have taken us on a fascinating journey to some incredibly beautiful places. I've learned from your knowledge, laughed at your observations and cried during the tough times. I admire your determination and love your spirit. May God bless you, David, Gracie and all who love you, dear Ellie.
ReplyDeleteThank YOU so much for sharing yourself and your sense of humor. Keeping you and your dear ones in my prayers. Can't wait for the book!
ReplyDeleteEllie, I have read your post from the beginning but this is my first post. You have made me laugh and cry; and know what is truly important in life. I love your sense of humor and feisty way. Through cyber-space, you have touched my heart and I will always think about your courage. Very much looking forward to your book. Thank you Ellie, of so very much!
ReplyDeleteYou have had a profound impact on my life and for that I thank you and am forever grateful. I am in awe of your courage. Thank you so very much. Sending you love and gratitude from SC... xoxo
ReplyDeleteEllie, it is you who deserve all the thanks...
ReplyDeleteThank you for your wit, spirit, bravery, and for living life to the fullest! You have given me so many life lessons. Your readers are with you
You are incredibly inspiring, Ellie. I'm at a loss for words but am thinking of you.
ReplyDeleteE l l i e, thank you...despite everything you have been through and are still going through you have given of yourself to us...strangers but oh so not!! People leave every day...just this weekend a lovely 19 year old boy was killed by a punch to the back of the head....his parents donated his organs. So much giving. He left oh so sadly and suddenly...you are leaving ...as we all are someday....but you know when. Oh so sadly. But you have given to us, again and again. What a strange and wonderful world that we have come to know your life. Thank YOU x
ReplyDeleteThank you. You are simply THE BEST. xxoo Suz from Vancouver
ReplyDeleteTotally unrelated, completely irrelevant and random, I bumped into this while browsing, when I read this I thought you might enjoy this old word…(soon to be new again ???)
12 Lost American Slangisms From The 1800s
#8) Shoddyocracy — people who get rich selling shoddy merchandise or services. "A lady of the shoddyocracy of Des Moines found, on returning from a walk, some call cards on her table," observed the Harrisburg, Pa., Telegraph of June 30, 1870.
awayhttp://www.npr.org/sections/npr-history-dept/
Thank you Eliie, it's a bugger of a disease ALS , but through your blog you have taught us so much and shown us courage, strength and a tenacity of spirit that not many people have. I want to thank you for you lively posts that have made me laugh and cry. Gracie can come to you blog whenever she feels the need to vent about the unfairness of it all. There is no judgement here. Thank you Eliie and I feel we would have been friends if we had met. Ciao bella and love to you and your family xxxx
ReplyDeleteDarling Ellie, my heart and my prayers are with you. Last night I stayed up and re-read all of HSD from front yo back, telling myself that maybe maybe there could be a do-over. So I guess that makes me a superstitious coward. But I've come to cherish you and Gracie and I thank you for you frankness and your wisdom. I send you love.
ReplyDeleteHey, Beautiful! You are loved and appreciated. Hugs and kisses, Ellen.
ReplyDeleteThanks to YOU dear Ellie! May I call you dear? Because that is how so many of us feel about you. All your accomplishments, and I'm sure there are many, boil down to how you have impacted others lives. Your families, friends, doctors, publishers, people on the street and even me, way out in a tiny Colorado town. Your reach is long and your impact is grand. I hope you find great comfort in this and in the love that is being sent back to you. I feel honoured to have known you, even if only thru this blog. Until we meet again, Jean
ReplyDeleteOh Ellie. You are facing humanity's biggest mystery and (if you are a believer in the afterlife) greatest promise. I suspect there is a wonderful surprise waiting on the other side...birthday, christmas, new years and the best brocante full of beautiful things, all for free, and all for you. Meanwhile, you are such an example of HOW TO LIVE RIGHT NOW and I am grateful.
ReplyDeleteYour in my thoughts and prayers.
ReplyDeleteGod Bless,
Laurie
I thank you, beautiful Ellie.
ReplyDeletePlease try and stay in touch, for as long as you are able.
With almighty love,
Irene from Sydney (the now proud owner of your gorgeous Japanese tea set)
xxxxxxxxxxxxxxxxx
Love you to bits--will buy your book and keep you near to my heart forever--and will talk to you, comment to you, think and love you wherever you are--here or wherever your giant soul takes you. And when I leave this Earth too I'll find you and yell, "Hey Ellie, it's Cathy from New York...remember? Let's open some Champs and celebrate." I love you sweetheart--.
ReplyDeleteOh Ellie. Strong, brave Ellie. I love how your love for Gracie and David and your friends jumps out of the blogosphere and hits me in the chest. We'll all think of you, sometime in the future, as the woman who grabbed life by the balls, brought up her daughter with a fierce love and realism, loved, and was loved by an argumentative, amazing, loyal French man, and so candidly shared her life with us. Thank you Ellie. Love and prayers for grace and peace and infusions of down home cookin'. Sherrie from Australia xxx
ReplyDeleteEllie, you have been a blessing to all of us with your sincerity, wit and humor and above all else strength and courage to share your personal journey with the rest of us. I'm praying that when it is time, you will close your eye's and the next thing you will see is the smile of the Lord welcoming you home. God bless you.
ReplyDeleteDear Ellie,
ReplyDeleteI have been reading design blogs for over nine years and have never left a comment (yes, I'm a stalker). But your strength, courage and spot on sense of humor has compelled me to write to you. You are such an inspiration, and I am awed by how you have let all of us into your private world as hellish as it can be. Thank you for being so brave to do so. But most importantly, I needed to let you know that I removed the leopard pillow from my living room where I have a zebra rug. You saved me from that ghastly mistake. However, you will be happy to know that my zebra rug was perfectly angled under my coffee table. ;)) Seriously, you are truly a hero and have affected so many of us with your life and the way you have lived it. I hope you can feel all of our love.
Forever changed by your story,
Kim Niles
Philadelphia, PA
Dear Ellie
ReplyDeleteHow you can still be so upbeat is amazing to me. I hope that I have learned from you and if ever I am in a similar situation in the years to come I will be able to deal with it with as much determination and guts as you have.
Big hugs and prayers
Jeannette
💚💚 sending you love Ellie. You are an inspiration to how to live your life through this storm. I love how you show the down side...and your hit list!! You fucking rock!!
ReplyDeleteWell this fucking sucks. I wish I could change what's happening to you. I know we all would, if we could. I'm so sorry, Ellie. Your sense of humor and snark has brightened my days so many times. I'm sending you all my love and hugs. Can't wait to read your book.
ReplyDeleteYou have inspired so many people, women, as you say, in particular. As you get ready to go, remember, we will be here and we will, in the months and years to come, occasionally speak up against bad behavior. We will stand our ground, at some point, and we will right then and there say to ourselves, "Thank you Ellie. Thank you so much for what you modeled for us here. A forthright courage, a focus on what matters, a lack of fear." And to Gracie, I am sure you have inherited some of your mother's spirit, and I hope you feel her presence with you always. <3
ReplyDeleteEllie, You truly have the best blog ever written. Your voice is in my head and I have learned so much being here. You are amazing and I am sending love, hugs, and good thoughts and prayers from California. I can't wait for your book. Thank you Ellie for being here and giving yourself to the world. You are a gift and a beautiful human. Much love, Kim
ReplyDeleteThank you for the love Miss Ellie... But I should be thanking you! You brought me back to life... I love you!
ReplyDeleteEllie- I know you are about to update the Gates of Heaven. If they aren't big or gold, they will be. Sometimes I think life is just a bunch of imaginary friends, but lady, you blew that theory out of the water. Much love, we will all find you when we arrive.
ReplyDeleteYour friend -
Laura
Ellie,
ReplyDeleteYou are a remarkable person, and will remain a remarkable person, even as your spirit soars to the place to which we all aspire.
Judith
Elliiieeee oh what a wonderful blog! I have to say I got super emotional ! Maybe I am an imaginary friend but this imaginary friend sends love and more
ReplyDeleteLove to you! You are thanking us??? I am thanking you for inviting us into your life ! Thank you soooooo very much !
Waiting impatiently for your book!!!! Can't wait ! It's going to be nothing but fabulous!
Danke von mein Hertz !
Samantha ( Garmisch Partenkirchen , Germany)
Ellie, I'm at a loss for words to explain myself to you. You are proof of strength and determination. You've lived your life without allowing this shitty disease take you down. Your battle has many times put my stupid problems in perspective. I don't know you, but I love you. I'm sending you all of my positive energy and hugs and kisses through this impersonal comment. You will forever be the only person who can make me cry and laugh all at once...
ReplyDeleteEllie, I am lost for words, perhaps that is a good thing. There is still a little ray of light, of hope sprinkling through,even after your Doctor's comment, that you will stay with us. We need a miracle, and even as I write these words, I know this is not my decision. The fact is that you will always be with us in spirit...I can feel that spirit now, strong, funny, vibrant even in physical chaos. Hus all the way to the moon and back.
ReplyDeleteThinking of you daily, Ellie. We are all so lucky to have you share your life and struggles with such humor and honesty and intelligence.
ReplyDeleteI have loved reading your blog and would like to think we could have been friends if we met. You are hilarious and the world has been such a better place because of you and your sense of humor. "Cards, flowers, cookies or murder, your choice." My God you are brilliant. I can't wait for your book. Sending good thoughts and prayers from San Francisco.
ReplyDeleteThank you! I came late to this blog, about a year ago, I think. And I stayed, not because of the lovely antiques (since the hubby dislikes antiques, do not buy any of that) but because of your spirit, your personality, your strength, your attitude. I have learned and will continue to learn from you. I admire you, how much, I will never be able to tell you. But you make a difference, you really do. So I am grateful to you, thank YOU.
ReplyDeleteNo-I feel that it's me that should be thanking you for a different perspective on my life. And for curing my lifelong desire to have a Birkin with one funny but very true celebrity laden blog post!!������
ReplyDeleteSending you love and gratitude from the Deep South - South Africa. I see so much vitriol and venom from the assholes online that seeing the outpouring of love and caring for you makes me a little less cynical about people. My gratitude is for your courage, your spirit, your grace and spunk that inspires me to grab each moment of my life with gusto. It's all so flippin' fleeting. From my heart to yours ❤️
ReplyDeleteI have loved every minute of getting to know you. I am so glad you finished your book! Hugs from NJ as always, Alyssa.
ReplyDeleteIt is with tears in my eyes that I write this. I'm incredibly sad that we will lose you, and here you are thanking us? Thank you!! You are a force! Even as you glide with grace toward the end of the earth, you have the capacity to enrich the world. It is magnificent, and I am so grateful that my mother and I have come upon your ferociously funny, inspiring blog. Sending love, prayers and hugs back. You are truly amazing and I hope you feel nothing but love in the days ahead. Meg from Minnesota
ReplyDeleteMy brother had ALS
ReplyDeleteI wish he had your balls! X
I so wish there is something I could do for you to make you better. You are the coolest chick around. I hope your doctor was wrong.
ReplyDeleteOh, Ellie . . . Sybil said it just right. I send you love and hugs in this truly overwhelming time. Be strong, my sister (when haven't you been?), we're here with you!
ReplyDeleteI'm a relatively new reader, but I want you to know, I have read your entire blog from the beginning. I love your writing, and I can't wait to purchase your book! I've been thinking of you constantly (which sounds weird), and I am sending you my most positive and supportive thoughts. You're a ray of light and that light will continue to shine. Much love to you!
ReplyDeleteEllie, feeling your love today and oh how good it feels. ALS fucking sucks and you have so generously given us a glimpse into the good the bad and the ugly. Thank you my friend. How is it that I feel close to you? Thanks for really being the best friend. I think of you as my"cool" friend who has lived in places that I wish someday I could visit. And for Gracie, we will be here for her always even if she thinks we are imaginary. I never liked saying good bye so I won't....Ellie.....you have enriched my life in so many ways. With love...your friend, Sue
ReplyDeleteWe will be here till the end and it will be an honour!!! Love and courage from Sweden /Hillevi
ReplyDelete"The Lord bless and keep you, may His face shine upon you and be gracious and give you peace." Numbers 6:24-26
ReplyDeleteYou have moved me to tears so many times, Ellie. Laughing tears, crying tears, and the tears that fall when I see bad decorating. You are a teacher to so many, I don't know what we are going to do without your posts, but you live in so many hearts already. So much love,
ReplyDeleteRie Congelio
I love you Ellie...alway... always...I would be on the next plane to Paris if I could but since I can't I'm soaking up the warm sun, swaying palm trees, blue water for you and sending the most love I have to give....xoxo
ReplyDeleteMy Dearest Ellie..... although I just found you recently, you have touched my life... I have had loss & hardships. Two years ago I found my sister, my real sister (mom and dad) had her prior to marrying and were forced to give her up.. That's what snobby grandparents did back in the early 60's. 48 years later she found me and my two brothers. So my faith was inspired again because I know our parents in heaven put us together and the energy in life made her want to find us. My point is in the miracle of life, nobody ever leaves us.... You are also that energy of life and miracle... and will be part of that energy forever in those that know you closely and AFAR like your blog buds.. (us). I wish we could have shared a bottle of wine together or better yet a CASE of wine and a pack of BUTTS. You are special and don't you ever forget that... I would have loved to have shared a lifetime of friendship with you and you so would have fit right in with my many groups of Gal pals. I wish you peace, harmony, please believe in your faith.. I know it's sucks... You have touched my life.. and I am so sad dear Ellie.... SO sad... Please continue to conquer your days and please keep believing in your faith and your amazing zest for life... YOU WILL NEVER BE Forgotten.. You have carried on with amazing grace, style, dignity and class and you will always be part of us... You define Remarkable...big hug girlfriend big hug... xxx
ReplyDeleteDang...we're real? Time to cowgirl up, then. What would Ellie do, indeed.
ReplyDeleteLove to you.
We love and treasure you more than you can know Ellie! I don't know how many times during my crazy dumb life I stop to think about you. I am rooting for you, I pray for you, I cry for you. I will miss you. I want to send you something fabulous but I'm not acquainted with posh Paris, but I will google. I'm likely to disappoint, but nothing can live up to your fabulousness really so when the token of my love arrives please accept it as such. Sherry
ReplyDeleteLove and Peace to you and yours
ReplyDeleteDear Ellie,
ReplyDeleteMerci beaucoup to you - an amazing human being! Your style is unique and very honest.
It is an honor to be a small part of your life. I feel like we've met though I know we have not. Of course, "meeting" need not always be physical, there is a spiritual connection in us all - especially for those willing to try.
Love your words! And your spirit.
Cindy - in St. Louis
Dear, Dear Ellie,
ReplyDeleteHow do I begin to express my thanks for making my world a better place. You are the most amazing human I have ever encountered, be it in person or through the Internet, wherever. You are leaving a legacy of love, of hope, of bravery, of honesty...
Thank you from the bottom of my heart. I cannot wait to order your book!
Sending love, hugs, prayers and peace,
Karen
Oh Ellie, we so love you. Take heart for Gracie You'll probably come back as her daughter!Extra hugs,prayers,and hot tamales. besos
ReplyDeleteThank you Ellie for allowing us to know you through your blog. You are loved and admired world wide. I hope your posts can be published in a book, if that's not what your new book covers. My sister, also a follower, will be in Paris the end of the week. I asked her to walk by in the gardens and blow a kiss your way. Stay strong. Love from Alexandria VA.
ReplyDeleteI feel ashamed because before I started reading your blog there were days when I was so down I lost the lust for life but then I found you and you and words have given me back the strength I need to go forward. God bless you for that sweet lady
ReplyDeleteYou are quite remarkable. I shall miss you terribly when you go. You have taught me thru your blog so many things.
ReplyDeleteThank you for making the world a better place.
Ellie, my group of best friends call ourselves the bitches too! You are one bad ass beautiful bitch and we will always love you. 💜
ReplyDeleteI don't know how I will make it without your blog. I have both of your books already and can't wait to get your new one. You have changed my life forever in the best way. I love you Ellie. I have never ever met anyone like you
ReplyDeletewe all have to take lessons from you. On an every day basis we confront problems much less severe with agitation depression anxiety and anger, yet you handle it with such grace dignity and humor . You are an inspiration to everyone around you. Not only have I discovered the love of flowers, antiques and French bakery food, I am motivated to be a better person and to cope better with anything that may come my way . Thank you Ellie!
ReplyDeletewe all have to take lessons from you. On an every day basis we confront problems much less severe with agitation depression anxiety and anger, yet you handle it with such grace dignity and humor . You are an inspiration to everyone around you. Not only have I discovered the love of flowers, antiques and French bakery food, I am motivated to be a better person and to cope better with anything that may come my way . Thank you Ellie!
ReplyDeleteI discovered your blog a few months ago, and went back to the beginning and read the whole thing. Thank you for sharing your insight, humor, style, and your ALS journey. Wishing you peace, joy and much love.
ReplyDeleteThank you for sharing yourself with all of us. You have made me laugh, cry and feel an abundance of love and compassion that I've been missing for a while. I pray for you on the rest of your journey and for your family...especially Gracie as she is dealing with the thought of you physically leaving her some day. But you will always be with her, as you will always be with me, even though we've never met, because of your wonderful posts...I feel like I do know you, at least a part of you. Thank you for your honesty and kindness. God Bless you !
ReplyDeleteSending love and more love. ✨💗✨
ReplyDeleteADORE YOU!!!!!!!!!!!!!!!!!!!!!ELLIE O'CONNELL DECRET!
ReplyDeleteXOXOXOX
God Bless you and thank you for making me a better person. Sending love, light and prayers to you and your family...especially Gracie
ReplyDeleteYou are an amazing woman and an inspiration to me. I have been struggling with very minor health issues compared to yours, but reading your blog and seeing your incredible strength is inspiring. You are an amazing person and Gracie is lucky to have you as a mom and David is lucky to have you as a wife. I am praying for you and your family.
ReplyDelete❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
ReplyDeleteDamn it!!! Dearest, dearest Ellie, you have made me cry so much I can't put my contacts in, again :-)) You are such a joy to me. You have so much courage. I think about you a lot. Know in your darkest hours a lot of us are thinking of you. I know these posts are your love letters to Gracie and all of us, too. Thank YOU for all you have given to me.... Sorry, I had to stop and go get some chocolate:-)) There is a song by Bob Dylan called "You're Gonna Make Me Lonesome When You Go". It evokes some beautiful images, (the man had a way with words) . It is more eloquent than I can ever be. So, if you can, listen to it. Sending love and comfort and hugs, big ole hugs! Know we will always be waiting for your next post.
ReplyDeleteThank you right back. You are an amazing person. Speechless.
ReplyDeleteI hope you know what losing you will mean to all of us. You are not an imaginary friend to us...you are real through your thoughts, opinions, guidance and unrestrained sharing of your journey through life. Our emotions for you are deep and loving and you will take these with you. And you will leave us with the same. When all else is lost it's the memories that keep a connection and you have a special place in ours. Carl Sagan said that starstuff we came from and starstuff we go back to. Sweet, sweet Ellie forever.
ReplyDeleteDear Ellie, you are a truly remarkable woman. I wish this wasn't happening to you and would do anything to spare you from this suffering. I am struggling with very minor health issues compared to you, but your resilience and courage gives me strength. I wish you whatever peace you can find at this difficult time, and I know that your beloved Gracie and David are so lucky to have you as mother and wife. I am keeping you and your family in my prayers.
ReplyDeleteEllie, Listen. I have a chronic illness too - degenerative and my family sucks. Sucks!!!! The doctors, "experts" in the field nearly treated me right into the ground. My family of bitches was right there waiting for me to fall in. Thanks guys - hope I get to return the favor! Is there really and truly nothing that can be done? Clinical trials, even in other neurogenerative diseases? Anywhere? A compassionate care use of a clinical trial treatment? When I see the garbage that gets to wake up every morning, it is puke-inducing. Get Dr. ALS on the phone and get him to call around. Call everywhere. (Who goes into that field by the way? Was grad school for torturing kittens and puppies all full?) I really mean this - there are people back from the beyond because of these compassionate care treatments. I know, I know - you may be too tired to fight. I know. Getting the fight kicked out of you constantly is horrendous and part of the whole thing.I barely pray anymore - for my sons mostly, and my parents who literally saved my life. But I pray for you - because as a fellow mom I know you are in a special kind of hell right now that burns so hot that you can almost not feel a thing. I am so sorry.
ReplyDeleteOla I remember sitting in Paris with you and Debbie and Kelsey and Gracie and my dear husband Jack. I would look at you as your caregiver would you give you a sip of wine in the restaurant and then slowly watch you take a puff of a cigarette, I thought to myself how can she possibly do this totally paralyzed? Ellie my dear, ALS does not have you, you simply experienced the monster. The grace and dignity you have gone through this with is incredible. I know you have jokingly called Gracie the brat and let me assure any of your readers she is one wonderful person raised by Ellie. Thanks to Debbie our daughter Jack and I had a tremendous privilege to meet all of you. Much love my darling Ellie till we meet again. Remember to come and tell me you're happy and in good shape which I know you will be. Love Jack and Ruthann. Little Rock Arkansas
ReplyDeleteThank you....for being you and sharing yourself with us.....
ReplyDelete-Diane
Dear Ellie, From the bottom of my heart,thank you for everything. I am forever grateful I came across your blog. You filled a place in my heart forever. I treasure the beautiful soaps I purchased from you and I am so grateful I have something to remind me of you every day since no one is allowed to use those soaps. Sending you love and prayers, Jeanne from West Jordan, Utah
ReplyDeleteYou are filled with amazing light Ellie. And your light is strong and powerful.
ReplyDeleteThank you for sharing it.
Sending you love and prayers. You are in my constant thoughts...
xxojoan
May you find comfort in knowing how many people love you and adore you. As you look out your window today, remember there is a constellation of people dotting this planet who look out their windows and onto the world differently because of you.
ReplyDeleteWith deep gratitude,
Hilary
Ellie
ReplyDeleteThank you for the gift of love, life, understanding and focus on what matters to each of us on journey. Your blessings wrap around me with the warmth of a beautifully hand knit blanket.
Kristin
Sending you love and gratitude...I will be eternally grateful for the two years we shared via your blog...it changed my life for the better...
ReplyDeleteDi
as always I am humbled. life has a strange way of serving you.....fancy utensils, cloth napkins, unusual salad forks, glasses with water rings and just when the entree arrives you are either no longer hungry or the price is too high. Sometimes you just need to get up from the table and head off for dessert. bon appétit my dear!
ReplyDeleteI'm crying all over my phone�� I want to come give you a Big hug!! Sending you love and more now that o know where to. Hope you know our love is real...light n love girl. Light n love��✨
ReplyDeleteEllie,
ReplyDeleteThank you for sharing your daily challenges and brutally honest views of your ALS journey with us...
I am not sure that I would have the same understanding of this disease without your blog.
You have shown great strength, courage, and a fierce fighting spirit.
I will look forward to reading your book...
I really do not know what else to say at this time except thank you.
An itty bitty, teeny tiny cold blooded heart would never be able to write the way you do!! Take all our love and best wishes and fly high. I have to believe it gets better after all of this. Sending love and comfort....to hell with all the rest!
ReplyDeletePLEASE LET'S ALL SEND ELLIE A CARD FROM ALL CORNERS OF THE WORLD SO GRACIE CAN SEE HOW MANY IMAGINARY FRIENDS SHE HAS!!!!!
ReplyDeleteShe has given us so much let's all show Ellie how much we care!!!!
XOXOXOXO from your imaginary friend in Bellevue Washington
Preparing my card already !!! Coming from Germany !! Much love and I have to say what wonderful people in this group! Love to all
DeleteImaginary friends
BEAUTIFUL IDEA!!!
DeleteXO
Yes ! as soon as I get home from FL...love to all
DeleteDear Ellie, you have unwittingly created an environment of virtual caregivers from all over the world. You have allowed once total strangers to enter your space and be a part of your journey. You facilitated non-judgment (its true!), deep compassion and what as a meditation teacher I describe as holding space. You have gifted to the world a deeper understanding of what it means to bear witness. We realized that all we could do is send you much love and peace. We couldn't help, except by accepting all that you have been and will continue to provide in our deeper understanding of ALS and the suffering of others. I thank you for sharing your journey, your family and your fierce zest for life lived beautifully and truthfully. You have changed the world Ellie for the better, how many can say that? xob
ReplyDeleteThank you for sharing your very difficult journey with humour, spirit, courage, anger and love. I have looked forward to reading your blogs which come straight from the heart and have deeply touched all of us. Wishing you strength and courage, love and especially peace on this last stretch. My thoughts go out to you and your loved ones. Ingrid from South Africa.
ReplyDeleteHave been reading your words for a long time. And always inspired by them.
ReplyDeleteYou have no inkling of the number of people you have changed, made themselves more aware of, taught the words "appreciate life" to and made laugh. Geeze.....when you cuss like a sailor it makes me so happy beause I've been known to throw a few bitch and f**ks around when they're least expected. You remind me of me so much. Which we could have gotten to know each other - have a feeling we'd have torn up a few towns!!! So Much Love to YOU!!!!
God bless you, dear Ellie!
ReplyDeleteI love your blog, your posts and you!
Ana Paula
from Brazil
Ellie - you have made us all better people. From better taste in design, food, lifestyle to better understanding how to live honestly and with spunk when living with extreme challenges on a daily basis. And most of all , a better sense of humor - no one is funnier, more witty than you. You have blessed all of us - you are a gift we will forever cherish.
ReplyDeleteEllie, thanks to you I'll never be able to even think about a zebra rug without wondering about its "alignment". You are a funny woman who,lives with gusto. What a wonderful challenge you are passing along to us, your absolutely adoring fans...live with gusto! I have enjoyed your blog so much. I was a lurker for a long time but eventually I had to come out of hiding and make a comment or two. You are the best. Thank you for taking us along on your ride. Peace and blessings from MS.
ReplyDeleteHaiku for Ellie
ReplyDeletethe jig is up
your time is up
goodbye
Haiku for Ellie: Another Perspective
DeleteYou have changed us all
by sharing the good and bad.
Brava, dear Ellie!
Ellie,
ReplyDeleteYou are so inspiring and so very courageous. I thank you from the bottom of my heart for sharing your story and entertaining and enlightening me with your wit, intelligence, and incredible taste! I cannot wait to read your book and will cherish it always...
love to you and yours forever Ellie xxxx
There are no words. This sucks. Peace to you and yours.
ReplyDeleteJody from Minnesota
I have been reading your blog now for over eighteen months (on the recommendation of gardeners cottage) and immediately went to the very beginning and read all of them. You are an inspiration to us all; your courage and wicked sense of humour has shone through every single one. I am devastated to hear you have run out of time- somehow you made us feel that you would always be here for us. My love and thoughts are with you, David, Gracie and all your family and friends.
ReplyDeleteThank you
Susan D
Ellie,
ReplyDeleteI am in awe of your strength, honesty, determination, wit, and humor. I found your blog about a year ago after my daughter was diagnosed with chronic lyme. I was scouring the internet and stumbled on Yolanda's instagram account and through that, I found your instagram and blog. One of things that I admire most about your writing is how brutally honest and hysterical you are. You live life to the fullest and when things are crappy, you just tell it like it is. Thank you for being you. Thank you for allowing us to share some of your private moments. Thank you for inspiring us to think outside of the box and to explore what life has to offer. I haven't traveled overseas, but you have given me quite the tour of France and all the wonderful places, food, and sites. I have lived vicariously through your pictures and blogs. Peace, love, and hugs from across the ocean. You rock.
My dearest Ellie
ReplyDeleteThank you for your friendship, your advise, the laughter and the tears. Above all thank you for being so real and for making me a better person. To give me strength and to show me that I can be kind and still gossip and be sarcastic, girl you are my role model.
I will remember you when I see chinoiserie, gilded mirrors, flowers or anything of beauty. I will remember you when I choose the right man in my next relationship because as you said the one before didn't deserve me and thanks to you I believe that.
I will never forget you and I will always visit the gardens of the palais royale and sit with you. My dear Ellie what a difference you have made in so many lives. When life gets rough I will remember your strength and go on. I still hope to see you in June. If I don't I love you and may your journey be filled with peace and beauty. You will always be loved, as someone said from one of my most favorite poems , nevermore
Lourdes
Ellie,
ReplyDeleteWOW that is a super hard blog to follow, thank YOU from the bottom of my heart. Thank you for showing me how to be brave with flair, grace and laughter. Sending you love now and always.
Darling Ellie, thank you for this loving post you gave to us today. I know it takes great effort for you to do this and what a gift you are giving us!
ReplyDeleteI will be in line on Thursday so that I can get a hot-off-the-press copy of your book. I've always wanted to wrap my arms around you and now I will have a little piece of you to do that with. And I will know that writing this book is your way of wrapping your arms around us.
You have had such a tremendous effect on my life with all the love, wisdom (you have been my how-to-live-a-good-life guru), beauty, humor and that razor sharp golden tongue of yours that you have shared and guided us with and will still be doing for a very, very long time. Truly, and I mean this, your book will be with me for the rest of my life so that I can continue to learn from you and in some small way to "be" with you. And of course to be able to brag that I "knew" you, such a great woman, - we were friends.
Look at you, giving until the very last moments. Your are a dream come true, Ellie. There's just no one like you, love.
Thinking of you and Gracie and David in my constant prayers.XOXOXO
Ellie, Don't know where to start. How can a person trapped by such an awful disease, remain witty, kind, entertaining and magnetic.
ReplyDeleteYou are one of a kind, and if I may say, all your friends are inspired and humbled by your spirit.
I am so happy to have found your blog...learned so much... Laughed and wept... You are in my heart forever.... ❤️👠👠 . Alex
Dear Ellie: thank you for sharing. My mother just died two months ago and I have not cried for her. Every time I read you I cry for you. Please know that I think about you and pray that you may have peace and joy. We are here. God speed and lots of love for Gracie and David.
ReplyDeletexoxoxoxo Elena
You my dear friend are so cool! One of the smartest, most passionate and funny women I have come across. May you and your family find peace during this difficult time!
ReplyDelete*A HUGE Congrats on your book! Way to go Lady!
♡♡Much love from FL.USA
I’m gonna miss you so much! That’s a real feeling, right!? During the last few years, as I watched some of my own “real” friends and family turn away from me and break my heart…YOU…with all your hard-hitting personal experience on the matter, became like the great voice from beyond ;) calling out every irony and injustice until we laughed or cried our way through it. On the flip side, you magnified everything I love about this world too…Food, Fashion, Family…FOOD ;)
ReplyDeleteThis morning I was thinking about that question James Lipton (Inside the Actors Studio) always asks his guests, “If heaven exists, what would you like to hear God say when you arrive at the pearly gates? I thought about it and decided it’d be pretty great to hear “Welcome! Ellie’s throwing a big party and you’re invited.” That’s what imaginary friends do, right? ;)
*Something you don’t know about me? I’m interested in genealogy and have often wondered whether anyone in your family has charted your ancestral roots. I wouldn’t be surprised (starting with your grandparents in Missouri) if you came from a long line of fur traders and explorers - It seems to be in your DNA, “sourcing cool stuff.”
Lastly, you know I love a good quote so I leave you with one from astronomer Carl Sagan. “The nitrogen in our DNA, the calcium in our teeth, the iron in our blood, the carbon in our apple pies were made in the interiors of collapsing stars. We are made of star stuff.” You’ll always be a bright shining star Ellie - Love moi XOX
Donna - ICYMT - "Donna - yes - sadly CFAH.org no longer. I have added my email to my profile (click on my name) so you can reach me. Eager to meet a fellow Ellie follower IRL. Hard to explain to anyone who hasn't encountered Ellie just how deeply this HSD experience has touched me.
DeleteDear Ellie, Thousands of thank you's coming back to you! Pls do forgive this side conversation. So very moved by you and the thoughtful comments from your readers. As always - thinking of you - and captivated by the scenes from your window. So much life and wonderment! xoxo Dorothy
Dear Ellie, I need to be thanking YOU! You have inspired us so much with your courage in the face of an ugly illness. You have reminded us to live life to the fullest no matter what our circumstances. You have kept a sense of humor when most people would not have been strong enough. You have given us an education about ALS by being so frank and sharing with us what you were going through ( well, except for those parts you said we couldn't handle). Thank you for everything. Sending you love and prayers. Also a sloppy hug and kiss.
ReplyDeleteFrom the first time I read one of your entries I was hooked. I spent the entire day reading your blog from beginning to end. Laughing, crying and laughing some more. You ability to see the humor in shitty situations spoke to me. As a fellow Housewives and Bravo Tv fan , who lives in Newport Beach, went to school in Santa Barbara, has kids who drive her crazy and a chronic disease on top of it..I have felt a kinship to you that felt real, which is weird, but I think a lot of us who read your blog feel. Your realness and humor and razor sharp insights will be missed. Thank you...for allowing us to go on this journey with you. You have inspired and touched so many...sending you love and praying for peace for all of you during this time. xx Claudia
ReplyDeleteOnce again I will say - I LOVE YOU ELLIE. Knowing you has changed my life. Hugs, kisses, and champagne (or tequila shots if you prefer)I will carry you around with me FOREVER. Susan, NYC
DeleteNo, thank you, precious Friend....your radiant light has embraced us world-wide
Deleteand drawn to yourself many disparate souls who might not otherwise have united, but now join to encircle you in love, admiration and gratitude. Your authenticity, courage and appeal to our better selves have made kindred spirits of us all; all because of you. You will never know until you awaken in Paradise
what you have merited through your gallant fight and generous heart here... but
of this we can all be certain, the Angels will be singing your praises (with His
joyful permission) as you arrive and what you find will be everything and more than you hoped it would be...beyond even your exquisite imagination.
You will be drawn to that stretched tapestry of life that you could only see from the underside - dark threads crisscrossing each other, making no sense, knotted in anguish and hiding from sight the great plan.. that frame will be turned upright and on the surface, those somber colors turned to gold and bejeweled,disclosing a breathtaking sight made possible by the struggle that prevailed beneath to make the tapestry meaningful and right. Your tapestry,
Ellie love, that will cover our memories of you with beauty and peace.... we
love you so. In the meantime we still have you and your long-awaited book...
let us rejoice in it...and be grateful.
Ellie, honestly I don't know what we will do without you. Reading your book will help for a while. You are such an amazing person, such an inspiration. All I have learned from you will never be forgotten. I can assure you, I will not look at a design magazine without wondering if Ellie would find it acceptable!
ReplyDeleteLove you dear soul. You will be in your followers' hearts forever. xxoo Jill
Ellie, Thank you for being the bravest, most courageous, adorable, loving, insightful, beautiful woman on the planet. Still praying for a quick cure, but if not, then peace my friend. Your journey has been a blessing to us all. I wish I was in Paris. Linda !
ReplyDeleteEllie, we are REAL!! I had the privilege to meet the WONDERFUL Elizabeth/La Contessa (or as my husband calls her Contessa E.) last weekend at her Vintage Fair.. a full circle day for me!!! As her blog is where I "met" you!!! Thank you for enriching and inspiring my life!! I and my family... will never forget you!
ReplyDeleteRenee in Northern California
I'm sitting in my sofa and thinking of you.... You are such an inspiration for so many and I truly mean that you make me stronger! You are a star Ellie ! Keep on shinning <3
ReplyDeleteDear Ellie...picture us all,still outside your window en masse,holding our tribute candles up to your window.
ReplyDelete"For I am the LORD your God who takes hold of your right hand and says to you,Do not fear;I will help you" Isaiah 41:13 love forever,Nancy in Texas
Dear Ellie, thank you so much for sharing your story and wit with all of us. You are an incredible inspiration and I will keep you and your family in my prayers. Much love to all of you!
ReplyDeleteNo No No, We have to thank you!! For being an awesome lady who writes an awesome blog!
ReplyDeleteBut how the hell must we live further without your classy,snarky,Fabulous writing about living the Good Life?
Esther
Ellie you did so much for all of us and you still do. I am believing in a miracle, dont give up, so much love from over the world cannot be lost.
ReplyDeleteDear Ellie, thank you for sharing your incredible story with all of us. I am in total awe of your courage and determination. You and your family are in my prayers. Lots of love. Anne
ReplyDeleteHi Ellie,
ReplyDeleteI'm new to the party..yes,that is right.. party! Because you are a party Ellie. Happiness, eye to details, exceptional food ,flowers, music, laugh, tears, joy, mischief, frustration, anxiety.. and the decor!! Perfection.... all in a mix that equals life. A life well lived with days well spent.
Just yesterday I stumbled from one blog to yours and boy,of boy! What a journey.
As you send your thank yous today, I must say that I'm not entitled to any. I regret not getting to know you personally (or sooner..but I will catch up with your blog)
Congratulations on your book. Outstanding accomplishment!
May your days be filled with warm breezes, beautiful skies and all things chocolate
As you smile with your eyes, we smile right back at you
We are indeed a special species.. women will find a way to nurture and care, no matter what.
You are in exceptional good hands Ellie.
Hi today Ellie,
ReplyDeleteI love you.
Have peace and comfort today.
I'm going to send you a card.
I love you
Margaret
I'm not really sure what to say, but fuck it I'll be totally honest.. I saw your photograph of Sonia rykiel on Instagram, and I could feel the insta envy surging up, I clicked on your link, and I'm floored.. Jesus I love your honesty, as someone who has been very ill in the past, I completely get it. I hope you find some comfort in all of the comments your readers have left, and as for Gracie being a brat, cut her some slack, she's terrified of life without you. All the best, and to good health.x
ReplyDeleteEllie, thank you for preventing all of us to be TRAPPED in whatever the day's binding flavor brought. Just imagine all of us shining a tad more in our existence because of your frank and courageous spirit. Thank You. xo Elena
ReplyDeleteMy heartfelt gratitude to you, dearest Ellie, for sharing so much of yourself and your difficult journey with ALS. You have given so so much to your readers and you have given so very generously. I send canyons full of love and prayers to you, Gracie and David. Andrea
ReplyDeleteYou have shown us your LOVE and I believe you have made us all reflect on our own lives - how to behave in the face of adversity and how to kick ass when appropriate. You will not be forgotten. With appreciation
ReplyDeleteEllie .....howdy , this is Nellie Ann of fall city Washington I just got back from the post office ....so excited to give to you.. I will continue to share your stories it is so powerful the strength in numbers (especially good friends) what can be accomplished...oh I just love getting a little ditty in the mail ....that's how I feel EVERY TIME I read your writings ....so in life always have something to look forward too....oh boy it's a huge honor to say I truly am so looking forward to your book🎉🎉🎉 hope you enjoy your from me to you gift....and a tug of the ear for now...much gush ewe ha ha Nellie
ReplyDelete"Your actions are your only true belongings."
ReplyDelete- Allan Lokos
Dearest Ellie, Although I'm a loyal follower I've never left a comment...until today. Thank you for the lessons on living life with love, laughter, compassion for animals, and an appreciation for nature, art, architecture, history and culture. You're a great friend and a brilliant writer. I love you! XOXO
ReplyDeletePeace to you and strength to those who comfort and care for you.
Given you were shitting yourself just recently I will take the sloppy kiss, but not the sloppy hug.
ReplyDeleteCan't wait to get my hands on your book. You also inspired me to read (How Not to Die). It's long, and now I'm eating so much fibre I'm concerned that I might shit myself.
Love, kisses and many, many prayers from the land down under - Esme, Esmerelda, Erin, Elspeth
xxx
I've been reading your blog for a couple of years now. I've meant to write to you before, I am sure I probably wandered into your Santa Barbara store at one time or another. One of my friend's is your nephew's cousin (she's a granddaughter of Carmen Dragon). My husband and I visited Paris last November and I had been hoping to haunt your neighborhood to bump into(I'm really not a stalker through) but you had already moved to Provence. I just thought there would be more time to read your wonderful word and admire your photos, You are an inspiration, in design, in living and with your bravery. Sending love and prayers to you and your family. Thank you. XOXO Denise
ReplyDeleteDear Ellie, as you think of your transition, understand the Real Self is immortal - this understanding will help you keep things in the proper perspective. We are fearful of death because we have forgotten our true nature.
ReplyDeleteConcerning those around you, try to focus on the unconditional love and eternal connection that exists with each of them. Love is an absolute, unconditional, and timeless state. Sometimes emotions run high, but the love is always deep.
From the time I started reading your informative, funny, and touching blog, you have, quite simply, taken my breath away! Thank you for sharing your journey--your curiousity, your lust for living, your appreciation for beauty and art, and your steely determination to savor every drop of what the day had to offer has been and will forever be an inspiration to me. You have grabbed for all the gusto...and I will never ever, ever, ever forget you. The world is a better place because you passed this way. God Speed, Ellie...I hope your next adventure is glorious!!! I join all those who have come to love you thru this extraordinary blog in sending you peace. You are an incredible gift! xxxoooxxx, Nancy
ReplyDeleteHonestly, if we had met in person, I'm not absolutely certain we would have been friends so I'm so grateful that we met through your blog! I've enjoyed your observations; been entertained by your stories and have appreciated your "eye" for fashion, antiques and home decor. I can't wait to read your book! I don't know how to say goodbye to someone I've never met so I'll just say, "Thank you, friend!"
ReplyDeleteGod bless you and your family ��
ReplyDeleteYour words from afar have made me want to be a better friend. Hugs to you.
ReplyDeleteThank you from the bottom of my heart. I have loved every entry of this blog. You have been unflinchingly honest about everything. You seem to live without fear or regret and that is so admirable. I want you to know that my 2 year old son will be raised to play "Roses and Thorns" every night at the dinner table. And I will always think of you and say a silent little prayer that wherever you are-you are at peace. Thank you for giving us the gift of your book. All of your readers are hoping for a miracle of course, but if your doctor is right thank you for spending your last days leaving that piece of you for all of us (mostly Gracie and David obviously). Sending you love from Chicago.
ReplyDeleteMy dearest, FUNNIEST FRIEND, let me be selfish for a second: your blog will stay "alive" for ever, right? It's a way of fooling myself that at least in this way I'll think you are still "out" there somewhere between "obnoxious" Paris and "disappointing" Provence...I guess that I'll find out in due time (sorry, I am not too savvy when it comes to blogs,...). I KNOW, (sorry David), that you will be BURIED in letters and cards and NONE of which will totally and accomplish accurately what a desperate, HUGE, deep, achy LOSS we will ALL feel. (Sorry, I have to laugh- I CAN actually see David overwhelmed and thinking that this IS the last straw! It will be like Santa Claus letters, they'll be brought in HUGE bags and you won't have where to put them all!!! Dear friend, I won't add to all the so well expressed thoughts and feelings already stated here. I love you, I'll miss you DEARLY (that's why I want to fool myself reading and re-reading your blog), I'm so looking forward to the book,...I thank YOU from the bottom of my heart for making me laugh, making me cry, making me laugh yet again. I want to thank you for allowing me the sharpness of thought to see the humor in the hurt inflicted by others, and laugh at their stupidity! You will never have an idea, no matter how much you are being told, of how MUCH you've help us all. As the DREAM, PERFECT friend always ready with the PERFECT advice given without a muffler!!! You will ALWAYS LIVE in my heart!!! Love ALWAYS and FOREVER, Gloria
ReplyDeleteLove You, on its way.....I landed in the emergency room today...oh my....and next on the way to get something to
ReplyDeleteyou in Paris, XOXOXO from across the pond in FLoRiDA
Dear Ellie - You will live on, through all of us. Peace to you. And much love. Merci beaucoup to you!
ReplyDeleteLook at this fabulous community you built, Ellie. I have loved being a part of it all. Save a seat at the table for the rest of us. We'll have lots to catch up on. xoxo
ReplyDeleteP.S. You do know that on Thursday night when your book gets released you're going to break the internet???
Ellie, please don't give up yet, please! I know that we have no idea how hard it is for you, but you have so much to offer! So incredibly sad that this happened to you. There is no justice in this ALS crap. Maybe the only teensy, tiny glimmer of a positive (for us) is that if it had not happened then maybe we would not have had the absolute please of knowing you in the most honest and outspoken way that is only possible if you don't have to think about the long term repercussions. You have mattered. You have made a difference. We are all richer for 'knowing' you. Whatever you decide, please ask Gracie to keep the blog up forever. Forever. xoxo
ReplyDeleteDear girl, thank YOU! You've lived a large life and generously (and in a delightfully irreverent way) shared it with us. I dread the day when Have Some Decorum has no new blog posts. It will be a sad day indeed.
ReplyDeleteEllie, thank you. Thank you for being you. Thank you for sharing. I have followed along with you since Janet at the Gardener's Cottage linked to your blog. I have laughed and cried. I may not have commented, as I don't often, but you have been in my thoughts and prayers. You have given us an inside look at your life and your illness. I bow down to your bravery. Please know that I am one of the probably hundreds of your readers whose life you have touched ~ and made better. I have no words of wisdom, alas. All I can do is send you love. Be well. XO.
ReplyDeleteIt's strange. I feel like I know you and yet we've never met. I love how you write about your life and I can hear your voice (the way I imagine it) in my head.
ReplyDeleteI've said goodbye to another dear friend recently and in speaking with her family I came to realize how each of us leaves behind a legacy. It is the people we have loved and who have loved us. It is the people who feel connected to our story. It is the memories we have created by which we will be remembered.
You have created a long-reaching legacy and you have touched so many lives. Gracie is wrong...all of us who have enjoyed your writing are your friends, We think about you, worry about you and pray for you.
I wish you and your family peace.
Dear Ellie, you have no idea how much you inspire me. Thank you for sharing your story; I hope you are with all your friends and family who are loyal, and love you as much as we do.
ReplyDeleteLove you forever Ellie.
ReplyDeletePatti
Ellie, Lourdes introduced me to you in my darkest hour. How is it, I thought, that this beautiful woman who is fighting for her life has shown me the light? Thank you from the bottom of my heart for your magic that made that happen. And thank you for all the little things that mean so much. For letting me know it is ok to say fucking ALS. For showing me that the gilded mirror my parents were so excited to give me is a treasure, and not gaudy at all. Because of you, I know it is ok to indulge in weekly Flower bouquets because they just make me smile and that my passion for really good chocolate is a good thing. You've shown me sights I may never see in person and made me love all things Parisienne. For making "something you don't know about me" my favorite phrase. And thank you for calling me friend. I'm fearful of leaving something out so will simply say thank you for everything you do and everything you are. I love you now and always. If I could put time in a bottle.......
ReplyDeleteGod bless you and your family, you're an amazing inspiration. Thank you, thank you for your blog...xoxo
ReplyDeleteIt is your readership who must offer thanks to you, Ellie. You are one amazing, real, gutsy and extraordinarily brave woman (the classy part of me-the one whose mother up in heaven would cringe-is refraining from saying one brave bitch). Thank you for sharing, for your humanity and for defining courage. Je t'embrace.
ReplyDeleteWow, you continue to blow me away with your blogs. Amazing. Remember when no one talked about sex and we sorta had to figure it out on our own? I think the art of dying is a lot like that. We have to figure it out on our own. But you have helped your readers by showing us, telling us, informing us about the art of dying by the way in which you are living...every single minute. I hate to gush especially since I am imaginary but you are one fabulous human being! Quite possibly the most fabulous human being I have never met. I'll see you in the Gardens, girl.
ReplyDeleteSending love from Pittsburgh,
Robbi
Oh Ellie! How lucky I am to have met you in person!
ReplyDeleteThank you for all you have given to all of us! True inspiration and courage and honesty is in short supply; and we have received tons of it from you!
We are all deeply grateful; as you can see from these comments. You have truly touched and changed an influenced so many lives! You really cannot imagine!
Thank you!!!!
Godspeed my Darling. Much Aloha. I love you. A bientot, d'accord? xo
ReplyDeleteDear Ellie, Thank you for all your love! You are truly an amazing person and have deeply touched so many lives! Words cannot express my sorrow for your pain but you are an angel......My prayers are with you and your family......
ReplyDeleteEllie, tears are rolling down my face because I am much like you, only you have been my imaginary big sister or really young aunt. I "met" you on your blog at a very very dark time -mostly caused by my own stupidity or arrogance- in my life. I have been working my ass off to get to closer to who the life I know I should be leading and living. I have two almost preteen daughters and everyday I am motivated to call bullshit on myself, work harder, and be closer to that person that I know I should be. I say all of this because although I don't comment often & I'm pissed that I wasn't yet in a place financially that I could justify shopping from your shop, I have soaked you up for the three/four years that I've had you in my life. I very much needed you and you were there. I love you and I have enjoyed every minute I've spent with you. I'll stop before I sound like I might show up unexpectedly in your apartment ;) (I can't afford the plane ticket! Haha ;)) You are an incredible woman. You have a permanent place in my heart.
ReplyDeleteYou are amazing Ellie! Most folks would simply give up with a diagnosis of ALS. I am in awe of your spirit and that you continue to embrace your passions despite the challenges this disease has brought your way. Can I just say that this is just so freaking unfair? But you've never seemed to feel sorry for yourself on this blog. You are a true inspiration. Thank you for sharing your story with me. I am praying for you and your family. I send you lots of love as well XOXOXO - Lauren Clare, Denver
ReplyDeleteAs so many others have said, we owe you the gratitude for showing us courage and humor in the face of that dreadful illness.
ReplyDeleteSo merci beau coup Ellie❣
Love and hugs Pat
Dearest most darling most adorable lovable witty funny real authentic courageous brave loving funny delicious tasteful discerning Bitch! OMG...this is the sort of community you have created...only a few weeks ago in March a real Texas woman walked into the store where I've been working - (that sells two things you would adore, cashmere and gourmet handmade chocolates) and being a Francophile myself, we somehow got to talking about France. She told me about your blog. I think the first post I read was the one about having a dinner party and when I read the bit about 'vegetarians' I died laughing and knew you were a kindred spirit. I lived in France/Paris for over 3 years, did I ever hear anyone talk about their dietary restrictions at dinner? NON! About their gluten free diet as if they had somehow become St Teresa of Avila because they don't eat wheat? NON! I felt less alone in my attitude, in my tastes, knowing you were out there, being ...not judgemental, just discerning. And what is my favorite place on earth besides the expanse of New Mexico sage in which I currently live...Palais Royale. So many times I stared up at the ceiling of Le Grand Vefour and dreamed of dining there...and you brought it to life for me...Recently living through a very difficult time with my husband, I did a visualization and saw myself walking with George Sand through the Palais Royale, then saw your last post with that photo of the view from your current apartment. You are such an inspiration...god that sounds like a hallmark card, but it's true. Even with ALS you manage to write this amazing heart felt and authentic blog and finish a BOOK, while most of us are finding excuses for why we can't do what we know in our hearts we want to do. Tell your husband 'merci' for your address...ok, I am blathering on now, but...been listening to videos by the spiritual teacher Marianne Williamson and she talks about how in the Course in Miracles we may be separated by our bodies, but we are all one in the realm of the spirit...so we are already connected and will always be with your heart, joy, love and the beauty of the Ellie Spirit! comme on dit en Francais...Bon Courage - but then, you've already proven you have that...xxxxxxxxx les plus grands bisou possible to you!
ReplyDeleteI forgot to say - sending love to David and Gracie and thank you Ellie, thank you for helping us all feel less alone and more courageous...you have made an IMPACT in our hearts. Love you so much.
ReplyDeleteEllie-- as one of your invisible friends, you have made me laught, you have made me cry-- you have made me raise my eyes to the heavens and yell "WHY"!!! I love going back and reading your blogs, you are classy, sassy and sometimes a little assey!!! Rest well ma petite--we are all praying for your serene peace and comfort! toto fab
ReplyDeleteand BRAVO for finishing your book...wow, what an accomplishment. you are a wonder of super powers. ok, I'll shut up now!
ReplyDeleteEllie,
ReplyDeleteThank you for the wise words and design sense. I now feel confident i can wear white jeans the correct way, thanks to you. Although never as chic as Yolanda.
I was realizing that with you goes all of your witty posts. I'm going to miss your blog so much.
I pray for comfort and calm in these coming days for you, David and Gracie.
Rebecca
I pray you have grace, dignity and a whole lot of love. You opened your heart and soul for us to receive. Thank you for being vulnerable and true to yourself. God Bless and Much Love.♡
ReplyDeleteOh sweet Ellie, I'm so sorry. It just makes me so mad. My friend had ALS and it does indeed suck. You've been such an inspiration to me, and will continue to be. Stephen is my hairstylist and we immediately bonded when we realized we both loved you. I'll continue to make recipes from your Thanksgiving and Christmas books and I can't wait for your new book. Thank you for bringing me into your world and teaching me so much. Wishing you much love and new adventures.
ReplyDeleteFrom Margie in Toronto - Thank you for all the wonderful posts. I have lost count of all the references I've bookmarked in anticipation of when I finally get to Paris - hopefully next Spring.
ReplyDeleteYou have always been a breath of fresh air - you have made me both laugh and cry - sometimes at the same time!
I look forward to your book launch this week and I wish you peace, love, and rest.
I hope the
you truly are a beautiful soul. I look forward to your book but more importantly I look forward to learning from you. you took a chronic illness and grabbed by the ball. Your strength humor and love show through every blog and picture.Sending you love and prayers ❤
ReplyDeleteFrom this day forward every time I hear the name Ellie I will think of you a beautiful person who touched so many peoples lives & I will hold my head a little higher; smile a little wider & make every effort to be grateful for every day I'm lucky enough to be granted. Peace & love my friend.
ReplyDeleteBarbara (Canada)
I USED to BE, you had me at those 4 words.
ReplyDeleteAlzheimer's, oh joy.
I too read your blog from beginning to today.
I laughed, I cried, laughed some more and then cried for us Moms. I used to be.
Grab your hat, pen and go sliding into that place that gives you joy.
Everytime I see zebra stripes and a leopard fedora, I'll always start laughing.
Thank you Ellie! From the bottom of my grateful heart. Love and light to you ... ❤️
ReplyDeleteMy dearest Ellie, you scared me to tears, my stomach turned when I started reading... I haven't been able to write to you, I don't know how to take this, don't get it, like someone said in the comments, so many crap waking up in the mornings, healthy and shit. And there you are, this beautiful hell of a human been, as real as it gets, no full of shit like most of us, fearless, unstoppable, intense, bright, irreverent you, beautiful Ellie, going through all of that, of course in Paris... But still, what the hell! You ARE our best friend, I don't spend this many hours with any of my friends, we have kept an incredible honest conversation that lasted a few years, we talked about stuff we rarely share even with family...or the closest of friends, if that is not real, I don't know what it is. Love is real, I pray ours reach you through your window and surrounds you like a warm healing blanket, bringuing you hope and joy.
ReplyDeleteI wish we could read you are getting a bit better, that you ar trying something new, and it's working, I imagine a bunch of us filling an airplane, all together, your loving friends an fans, your students,
Maria theresa you must be a queen or a princess......you have said everything I wish I knew how to say! So beautifully and eloquently....you have said it all....and how we feel .......Thank you! And Thank you Ellie for searing your soul into our hearts......and changing our lives and how we see our lives.....for the rest of our lives......
Deletethank you from my deepest heart and soul! You have given us all such a gift!!!
Do not go gentle into that good night.
ReplyDeleteRage, rage against the dying of the light.
I think this is why we admire you, Ellie.
xo Marianne
Marianne......you get it.
DeleteCommenting on my phone, not a great idea, I was saying that we would stay in a hotel very close to you and would come to your window, and serenade you, with Yolanda and La Com
ReplyDeleteIf we could only get there......Ellie...you can hear us....we are singing!!!! from our hearts!!!
Deleteme too!! I want to serenade Ellie also!!
DeleteWhat's going on? This piece of shit iphone6 ! Ok, perhaps with LA CONTESSA and Yolanda leading us and we will bring you an obscene amount of flowers and we will sip champagne , the best kind of course, and you will recognize us, like you knew us from college and we were best friends, and you will get through this and you and Inès de la Fresange will take us on a tour .... I have to stop because I shouldn't take so much space... Ellie, we love you, please, try something else and another doctor!! God bless you my friend
ReplyDeleteI adore you!!!
DeleteYou are the only blog I read, and you had me at entry #1. Thank you, thank you for sharing your story - every tear, chuckle and snort (from laughing so hard... yes, this ocassionally happens) has inspired me in many ways. You bring joy to so many, and we all are thankful for you. Sending you and your family lots of love and peace, and thankfulness during this time. stephanie xo
ReplyDeletewe owe Ellie for all the "snorts" when we laughed so hard! Nothing is better than laughing so hard we "snort"!!
DeleteThank you , Ellie....for all the "snorts"!! They are gifts!!!!
��Ellie, I am sending prayers and much love your way. Annette
ReplyDelete💔
ReplyDeleteYou are the strongest person I know.
You are in my prayers Sweet Ellie.
Dearest Ellie, thank you for sharing your strong, funny, intelligent self with us. You exemplify the triumph of the human spirit over the crap we encounter in life. I will miss you. My thoughts are with you, Gracie and David. Aloha, a hui hou friend.
ReplyDeleteditto! everything sounds better in Hawaiian! I send this!!
DeleteYou will always be with us all! So you better show us signs every now and again! My mother still does.....after 37 years!!! I promise you! (we were close!)Not always the case; obviously.
What a lovely, lovely concept. You are surrounded by love, Ellie.....all over the world. What a great thing! Who else "goes up" like that?????
ReplyDeleteNo one......much.
My Gd, Ellie but you are a force of nature. Who amongst us can even imagine a world without you in it... Don't be afraid , heaven is full of extraordinary beings just like you, not least of which is my forever 11 year old daughter Tiffany Raine. Like her, you can have tea with Princess Di, Marilyn Monroe and Dorothy Parker! Thank you for finishing your book. And in the meantime dearest, in the words of the inimitable Leonard Cohen: Ring the bells that still can ring. Forget your perfect offering. There is a crack in everything. That's how the light gets in... Hang in there darling Ellie, we love you lots xxx
ReplyDeleteLove you much! Tell Gracie were are not imaginary, but indeed VERY real. Tell her we're here for her if she needs us. I'm waiting anxiously for your book.
ReplyDeleteDearest Ellie,
ReplyDeleteI've read your blog for a while now, stumbling upon it as a poor university student dreaming of becoming an interior designer. Oh, what an escape your blog is among my days filled with boring diagrams and statistics! What started out as a procrasti-read during lectures, dreaming of beautiful 1940s vintage chairs, became my go-to blog to read every day. But for some reason I've never felt the need to comment.
You are by far the bravest person I know, though I have not met you, I feel as though I have known you for a while. I think we can all take away your attitude and zest, and you have truly made my little world a better place. I can't thank you enough for being so gracious and documenting your journey through good and bad. Funny thing is, I am currently a masters student and am completing research on breast cancer. I see all women from all walks of life in the hospital who usually, as cold as this sounds, leave little impression on me. But for some reason, you - who is halfway across the world in Paris (I am from Australia) - always springs to my mind. I wonder if you are having a good day, a bad day, or a really shit day.
I wanted to tell you because of you I am changing course and am hopefully going to pursue research in the neuroscience field in, you guessed it, ALS. Reading your blog and seeing your ups and downs has made me angry, angry that there is no cure for this. I can't imagine what a living hell this has been for you and your loved ones, and I hope one day soon we can finally find the cure and answers that we so desperately need. Rest assured, if I ever publish anything it will be dedicated to Ellie - the crazily wonderfully tenacious lady living in Jardin du Palais-Royal.
Sending you big warm hugs and lots of love, take care x
Ellie, you are such a blessing to me. Thank you for everything. I hope you can still laugh out loud because Stephen Andrew is the funniest person ever. My card is on its way! Sending so much love.
ReplyDeleteDarling Ellie,
ReplyDeleteYou are a bright light that will never burn out! You have given so much to so many, I count myself blessed to have stumbled upon your blog...I think it was meant to be...
I will carry you forever in my heart. Thank you for being beautiful, irreplaceable YOU! Justine