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The Book, AND SO IT IS


 
Well, today is the day. The day I share with you another part of my life… A part that you have not seen. I feel like I have been holding out on you but I wanted to save this particular moment in my life for a very special reason… The Book.

 
I know that I have been talking about his stupid book forever but I have finally finished it. I started writing the book four years ago because I wanted Gracie to have something solid to remember this experience. But now, the book has morphed into something else. How could it not? Four years ago I was a different person… Sort of. Having ALS is a tricky disease… You keep who you were but a stranger emerges and you have to learn how to cohabitate. Sometimes you like your new roommate, sometimes you don't. Sometimes this new person teaches you a thing or two.

 
This book that I wrote, AND SO IT IS, is different from the blog. It is tougher, sadder, and sometimes surprising. It has taken me all of these years to write because every time I start to proofread a chapter, I start crying like a baby and then I stop for a few months to fucking collect myself because life with ALS is so brutal that is it surreal.

 
So, I am warning you that this is not an easy read but I think in the end it is an important read. Not to be full of myself but I think that a lesson or two can be learned. What do I mean? I mean that ALS schools you about who you are, who you were and who you need to be. These are lessons that I did not necessarily want to learn. I was perfectly happy going about my ignorant existence before ALS. However, I did not have a choice but to learn how to adapt to my new life.

 
AND SO IT IS is a big book, almost 200 pages. It is not about decorating, it is not about cooking, it is not about annoying French people, it is about the hardcore past six years of my life. The book starts with the lead up to my diagnosis while I was happily living my life in New York and ends with some brutal honesty and what I think my legacy is. The 26 chapters delve into every aspect of my life that I have not really discussed in the blog, if you can believe it.

 
Yes, I discuss my childhood. Yes, I discuss my relationship with my family. Yes, I discuss my past. Yes, I discuss my feelings and I also answer all of your questions, however tough they may be, including your sex questions. I have not kept anything from you because I am all about transparency, even though I hate to use that word but it is the only way that we are going to learn from this train wreck called ALS.

 
By nature, I am an optimistic person and I think that this trait has served me and saved me but there have been times of utter despair so dark that I do not know how I came out of it… Maybe I am still in it. Who knows? All I know is that I can say that I have survived ALS. I know that that may sound strange, but let me explain…

 
ALS did not take me before I had the time to create memories with Gracie and David, reach milestones, tell my friends that I love them, accomplish a thing or two, prepare for the future, and learn life lessons. I hope the book allows all of you to take what I have learned and incorporate it into your own lives.

 
I could tell you more about the book but I feel like I should just shut up and let you experience the book on your own. Let me warn you, you are going to cry and laugh and have some moments of clarity regarding life… The good, the bad and the ugly. There are some definite surprises in the book like Chapter 19. Okay, okay, I will shut up.

 
So, here we go, the book, AND SO IT IS. There are three versions… A giant hardback coffee table version, a softback version and an ebook version.

 
For the large coffee table version, CLICK HERE.

 
For the softback version, CLICK HERE.

 
For the ebook version, CLICK HERE.

 
As always, a portion of the proceeds will go towards ALS research.
 
I hope you like it.

140 comments:

  1. The Reluctant SalonniereApril 21, 2016 at 3:26 AM

    I'm crying already, you've taught us all so much about facing hardship, thank you for everything.

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  2. I'm down in FL for a few weeks..i woke up &.its 6:39 am...something made me check my phone...im so glad I did..just ordered my copy. ..I hope its waiting for me when I return home...love you Ellie O'connell..always always. . xo jeannie

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  3. Congratulations Ellie! I can't wait. Also please add one more version "the beach read" where you give it a romance novel cover. I love a good bait and switch.
    This is huge and must be a weight off your shoulders. Congratulations again!

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    1. The Reluctant SalonniereApril 21, 2016 at 8:03 AM

      To echo Stephen, yes congrats, you make Sisyphus look like an anaemic wimp.

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  4. Purchased! I hope you sell a jillion of them!

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  5. Pondering which format and loving it so much that I pinned it. Where you ask? Well, the only place that appeared appropriate was the "Jewels I Love" pin.

    Was reading the NYTimes this AM about how assertive shoulder pads made a strong come back in the spring shows. Arrrrrgh. Hoping you can hang on until this 80's threat passes us by. Sorry, that is so shallow, I hate myself.

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    1. I bought the hardcover so I can say Ellie gives me a hard on.
      Hope this helps.
      May shoulder pads never leave us again.

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  6. You are so inspiring. What a beautiful gift for Grace.

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  7. I just ordered your book and I'm so pumped! I'm so happy you finished Ellie. Sharing from the heart ....that's a gift and I so appreciate your courage. Continued love and prayers for you and your family.

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  8. Just ordered the book...now I will always have a part of you! But so wish we could have all of you...forever!!! Please feel my arms around you in love! xxxoooxxx Nancy

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  9. My dear Ellie, am I so lucky to be the first one to comment?! My reward because I didn't sleep last nigh, couldn't fall asleep, left the bed and went to write a post about you, maybe it's all over the place but I needed to keep you company, you are there, in the old world and I'm here in the new one, we almost never awaken at the same hours, so it seems tonight or today we did. I love you dear Ellie, I can't wait to read your book and get to know you even better... Thinking of you, Gracie and Teddy, and of course Your David... Many soft, long hugs for you and all the blessings necessary for a miracle, with love M.T

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  10. Just ordered the book--and asked for quick shipping baby!! Your photo on the cover is worth the price of admission right there!! I love you--please keep making memories---can I say I love you once more?? I love you! There!

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  11. You are amazing. Think about you every day.Looking forward to reading your book. Love from NY. xoxo Mrs. Petrie

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  12. Good morning Ellie! So excited I'm starting to read it now. Love n light to you today!!

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  13. Very excited to have ordered your book. I have loved reading your blog and cant wait to read the book. Thinking of you. Lesley x

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  14. What an accomplishment - an everlasting
    Gobstopper of a tangible memento for all. I will read it with a bottle of good crisp white wine and a box of tissues. My packet should be flying towards Paris by now!πŸ’“

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  15. You are a force of nature beautiful Ellie. A phenomenon! Congratulations. I cant wait to read your book. We aren't your imaginary friends, coz we love
    you so much. I love the cover photo. I catch myself smiling too everytime i come across that photo of you. I hope in the book you have a photo of you in a bikini dancing on a yacht in St Tropez. That's how I'll always remember you. God bless Ellie.
    Jo xxxxx

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  16. Ordered.
    What a remarkable woman you are! With every other thing you have had to deal with, a husband, a daughter, a blog, oh and a fairly demanding task master of a disease, you have followed through and finished this book! What a triumph and what a relief that must be! And as someone else mentioned, what a personal and permanent gift for your daughter!
    I look forward to reading tough stuff and your personal trademark black humour, and in your inimitable style, where you take no prisoners. Reading your blog has been serious, but also laugh out loud, and for that I thank you! You have touched many lives with your wit and charm and profanities and courage to say exactly what you feel.
    You may feel that you are sending stuff out into the ether, but all your "imaginary" friends right around the globe, have valued you greatly. It's clear that you have a committed, loyal following of friends who have looked eagerly for the next post in their in-box from you over quite a period of time. Most of us have not been able to meet you face to face, but a genuine feeling of friendship is there, because you have been so open and willing to discuss things that many people confine to just one or two...
    I wish you well.
    Deborah from Melbourne, Australia

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  17. Extraordinary Ellie, I am honored to have ordered your book and cannot wait to read every word. Thank you for this amazing gift - I am so blessed to have found you. My prayers and love always, Gina from PA

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  18. Just ordered the ebook version because I have no patience and need to read it NOW.

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  19. I have been reading your blog for, well 4 years maybe and now I cannot wait until my next paycheck arrives to get your book! :-) Much love from Prague!(Czech Republic)

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  20. I can't wait to start reading! Thank you for sharing the good, the bad , the ugly, and of course the gorgeously chic. Peace and love to you, Gracie and David.

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  21. Congratulations! You did it! What a major thing to achieve. Sending peace and comfort to you, with love, too.



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  22. It's morning in Connecticut and after checking my Instagram from bed, I ran down to my computer to order your book. Can't wait until it arrives! I am so proud of you for finishing it. You have touched so many lives and in my mind I picture all of us as little pin pricks of light on a map of the world. Your words and your insight continue to spread to every corner of the globe and make an indelible impression on all our hearts. I cherish the beautiful bamboo hall tree I was lucky enough to snag from your shop and after helping to clinch the sale of my first flip house, I will be using it to stage everyone after. Please keep your chic people watching parade at the Palais posts coming. I have not lived in Paris for 30 years but through your eyes it is the city I remember and even Sonia Rykiel has changed a bit! I hope you have a good day today. Will check back with you soon! Laura oxoxoxo

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  23. Congratulations, Ellie! I just ordered the coffee table size. I want everyone to see it and ask about it so I can tell them about this amazing woman who is living life to the utmost while dealing with this little thing called ALS. Usually my book heroines are from another century and I cannot get on the internet and comment and tell them how much I enjoy their work. There is one other thing I want to say. I have read and reread the loving comments on your last blog. I wonder if we tell the people in our lives how much we love them? Something to think about. And so it is, peace and blessings from MS.

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  24. i will read your book ellie. your voice is indelible now.
    rumi's words for you here.

    "there is a light that you will follow. at first you will think it is a star.
    then you will feel the difference. this is a light like no other you have seen or felt.
    it has always been with you though rarely seen.
    trust it now. it will be a brief journey, only a moment more.
    but do come prepared to laugh a lot."

    godspeed darling girl. from all of us who love you. ♥

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  25. That is wonderful. You are a real inspiration to us all. BIG CONGRATULATIONS. I can't wait for my copy. xxoo Suz from Vancouver

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  26. To our dearest Ellie, ordered your book two days ago and of course the HARDCOVER... it shall sit on my antique tray in my living room.. It plans to arrive the weekend I head to the beach...of which I will embrace every single page and constantly be thinking of you and what better place to read it then on the beautiful island of MV.. You are truly amazing and I am wishing you peace.... Thinking of you, David and Grace, and of course mom and sissy too. Love you our dear Ellie... continue to conquer your days... I think of you often....and always will. xx

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  27. I will treasure your book. Your legacy. Such a difficult journey yet you have turned it into a learning and growing experience for so many. You are one in a million. Thank you for being so strong and including us.

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  28. I normally hate Ebooks but I made an exception for you BC I was not about to wait.

    I'm now done.

    But please don't think you can get away that lightly Madame Ellie. Your very demanding public ( I'm speaking from a segment of the masses ) would like a second book please.

    Stuff like who would you get your Csli house decorated by and why?
    Who would decorate your Parisian pied a terre and why?
    Who would do your house in Provence and why?
    Who would cater for your dinner party but had to be a famous chef BC French guy around the corner we can't relate to.

    Who is your least favourite to chef? ( pioneer woman doesn't count)

    What's your "bitch please" outfit?

    I hope you get "our" drift.

    Ok I'll stop being pushy now.

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  29. Just ordered your book....you are amazing! xoxo Tracy

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  30. I WILL LOVE IT!!!
    NOW, I NEED TO CLEAR MY COFFE TABLE SO IT CAN HAVE A SPECIAL PLACE.........I only have a gold gilded coffee table in the KITCHEN with a mirrored TOP........SO that is where it will BE!ALWAYS WITH ME as I tend to spend so much time in the KITCHEN..........would you mind if it resides on an 18th Century book holder from BOLOGNA, ITALY?I thought so........YOU are a TREASURE...............PAVE THE WAY.........and WE will ALL be waiting for A SIGN!!!XOXOXOOXXOXO
    SUGGESTION, to GRACIE........start a BLOG.Tell us what your up too,your thoughts,your signs from MAMA........and well photos of YOUR LIFE.YOU would HAVE MANY FOLLOWERS keeping tabs on YOU and HELPING YOU only if you needed guidance from an outside person.GIve it some thought GRACIE.........it would be a wonderful way to HONOR your MOTHER and keep her spirit ALIVE.Take your time............WE will ALL be here..........so what I am saying is do not Delete THE FOLLOWERS of HSD.I think YOU would make a bunch of people VERY happy .Just a thought I had yesterday...........you do as YOU NEED TO DO.BIG HUGS..............XO

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    1. What a good idea!
      Sheila in Port Townsend

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    2. I'd thought the same thing, but wasn't sure Gracie would want to continue the blog.

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    3. I concur, dear Gracie, we would love and welcome you and your thoughts, ideas and whatever you would care to share with your mom's not so imagine friends. We love you already!!

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  31. ANOTHER THOUGHT!
    Has anyone printed out the BLOG from the beginning to NOW?That would make a WONDERFUL READ TOO..........ELLIE,can someone DO THAT for YOU?Then bound it as a book......................just as an ADDED ACCESSORY to YOUR BOOK!ANYONE OUT THERE involved with PRINTING who could HELP with this..............?
    XOXO

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    1. Oh yes I agree what a great idea!
      I am off to place my order...the big hardcover of course!

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    2. Ellie, I hope your blog will be left up forever as it is one of a kind. And such a tribute to you.

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    3. Excellent suggestion, Contessa!

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    4. Yup! I had the same thought.

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    5. That would be awesome !

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    6. I see 4 volumes. 2009-13, ( 60 posts) 2014 (146), 2015 (117), 2016 (still counting) 12 chapters each. (divided so we can keep the pictures.)

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    7. La Contessa - wonderful idea! Hope it happens - what a treasure that would be as a companion to the BIG coffee table book I'm about to order. xo

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    8. I'd love the book version as well as leaving it up.

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    9. nancysbaldwin@yahoo.comApril 22, 2016 at 6:37 AM

      Me too, Pauline! PLEASE do not let it just disappear.

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  32. I just ordered mine, thank you so much for doing this. You have already chanced my life forever.

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  33. I can't wait to read the book!! Thank you for writing it. Congrats and thinking of you often.

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  34. Can't wait until it's here. From Paris to Oregon - from you to me. Merci Beaucoup!!!
    I hope all the love coming your way today puts a big smile on that beautiful face of yours.
    I'm am so happy that you were able to finish this - teach us, Ellie, teach us. Can't wait to hold it in my hands!

    Love, love, love to you xoxo

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  35. PS: The cover photo is PERFECT! Oh so beautiful!

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  36. What a fine accomplishment, young lady. I hope it's given you some satisfaction. Looking forward to reading it, and having it because it will help keep you alive for me. Bon courage, ma cherie.

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  37. Super excited- just ordered and can't wait to dig in! Love you!!!

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  38. BRAVO Ellie, you published the book!

    The tougher the book is, the more I do admire you for writing this blog in such a different manner with so much humor and so full of other subjects than your suffering. You managed to let that other side of you survive in this blog. But you also worked on the documentation of the suffering. How did you do all this?

    I was a bit late to understand your blog, unfortunately. I would have liked to ask you so may questions. And wouldn't know where to start. About dealing with Antiques for example... And other things. You showed it to us: There never is time to loose.

    And at this point the human being is getting selfish: We would like to have you forever!
    I know I wasn't allowed to say that but I did it anyway.

    Thank you again for everything! I will buy your book now!

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  39. Hi Ellie,
    I am reading your book right now on ebook and savoring your words. I can't stop. You are a great writer! Thank you so much for writing this and all you do for all of us.
    love and namaste from southern california

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  40. Congratulations, Ellie, and thank you! Of course, your magnum opus is your life itself and Gracie (obviously), but it's a huge accomplishment to capture it in writing. I'm so happy the universe let you hang out in this dimension long enough to finish the book. Although, if it was an important part of your destiny to finish the book, maybe you should have slacked a little longer...

    It is a supreme gift for Grace, but for us too.

    With thanks and affection, Nora.

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  41. Dear Ellie,
    Yes, you certainly have created memories, learned a thing or two, learned life lessons -- all that you said. Thank you -- again -- for sharing with us. So many thorns in your life, but here in the publication of your book is a big beautiful rose. I'm sure we will be enriched and learn things that are helpful in our own lives and in understanding others'.

    I was wondering the other day if there was anything that we readers, collectively, could do for you. I suspect that might be to support ALS research. Are there any avenues or organizations that you would suggest? Or is there anything else we could do?

    I'm hoping that this conversation will continue for a while yet. But in the meantime, blessings, peace and love to you and yours. And always, prayers.

    Carolyn

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  42. You live your life with grace, dignity and the right amount of revenge :) I ordered my copy this morning and a card is making its way to Paris as I type this. Love to you, David and Grace.

    In_the_Capital

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  43. Book ordered! Blessings and comfort to you and yours!

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  44. Congratulations! Truly excited to be reading your book. It will be such a treat. Love from the Caribbean xx

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  45. Looking forward to receiving the book!! xoxo

    Renee in Northern California

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  46. You are just the coolest most amazing person that I know, I just adore you!
    Of course I had to order the coffee table size but I couldn't wait to read it so I also ordered the ebook. I will go home tonight and read it with a glass of champagne. As the tears flow I will smile with gratitude of having had the opportunity to meet someone whose light shines as bright as yours. I lost my partner and best friend this year and my heart is still breaking but you my dear friend will never be considered loss. You helped me grow and see myself differently. You are the brightest star in our universe and I know that you will always shine your light over all of us.
    I love you Ellie

    Lourdes

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  47. Dearest Ellie, you are the coolest woman that I know!
    Of course I had to order the coffee table version and the ebook because I can't wait to go home, serve myself some champagne and read it!
    This year I lost my partner and best friend, my heart is still breaking, you will never be a loss because you will always be with me. You are the brightest star in the sky and your light will always shine upon us. I love you Ellie thank you for sharing your life with us and for making me a better person.
    Lourdes

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  48. I am so excited to read your book, dear Ellie. I have been following your blog for the last year, and you're my fucking hero! Love from Norway:-*

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  49. Truly amazed by all that you are! Heading over to order a copy of the book now. I'm sure I'll cherish it forever - much like this blog. Lots of love, thoughts & prayers from Stockholm, Sweden.

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  50. Yay you did it!!! Bought my copy and can't wait to start reading . I keep looking out of my window in the Texas Hil Country wondering what you are viewing from your Palais Royale window. Thank you so much for the book.

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  51. Dear Sweet Ellie, I just finished reading the Ebook version of And So It Is. It is a true gift, an inspiration to all who will be lucky enough to read it. I will treasure my coffee table version and can't wait to receive it in the mail. My heart breaks for you. You have inspired me to be a better person. Sending you much love and peace. Bon courage, Judy

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  52. Worth a call?

    http://www.gazettetimes.com/news/local/osu-researchers-claim-als-breakthrough/article_13752795-bd8d-59da-a38f-58e5b66ca5eb.html

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  53. Downloaded the ebook. Can't wait to start reading. xo

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  54. Your book will have a very special place in our home, on the coffee table where it should be, for the most courageous wonderful person that you are. X

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  55. Ellie, I plan to order your coffee table size book. It will forever be on my living room table, you will live on in California. I will tell you the end of my sister's story now. I've told
    You before that she has ALS, but I never told
    You she died a year ago, April 27th. I didn't have the heart to tell you that because I wanted you to keep believing. I wanted to keep believing you could beat this piece of shit disease. Her name was Drew, she was my kindred spirit, but I refuse to be sad-why? Because she didn't get the opportunities that I have. So I will live for her. I will love my grandbabies, because she can't. I will continue to fight for a cure for ALS, so someday no one has to live the way you two have. I was so distraught when my sister was dying I couldn't be there with her, but listening to you talk and understanding your feelings has helped me. I am so glad I got to know you through your writings, plus you sold me the vintage French foot stool and rosary. Mine forever from a faraway friend who helped mend my heart❤️. I send love from California. Richie Grant, Sonora, Ca

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  56. Dear Ellie,
    I have news!
    My card is winging its way towards you...don't you go anywhere.The game isn't over yet.

    And someone saw my suggestion that 'we' (your millions of admirers) try to meet up when in the same city...So, now, some cool woman contacted me and we are going to have a drink in your honor when she's in LA this summer. This will go on and on, you know...you are now part of us and you will continue to enrich our lives. Merci Beaucoup!
    Anyone else who likes the idea of toasting Ellie can contact me candace.culp@gmail.com

    Going to buy your book now.
    You are such an inspiration...I have been working on a memoir and there is nothing stopping me except me, meanwhile you had so much that could have stopped you and yet you did it. I will always remember that and you.
    xo Candace

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    1. My husband and I vacation is LA quite often. I'll contact you before we leave and meet up for a drink. It's amazing how Ellie has connected people from all over the world.

      In_The_Capital (Instagram)

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    2. I am in Langley, BC just outside Vancouver, anyone want to have drinks?????

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  57. Thank you. I am looking forward to reading your book. Is there any chance the ebook will be available for Androids?

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    1. I am also hoping for an ebook format for android users. <3

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    2. Ditto Lynda. I don't have an ipad but do have a Kindle app, or would download any app I needed to be able to read on android.

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  58. Dear Ellie, thank you for giving us your book. I look forward to receiving and reading it - from Paris to Florida!
    Much love and peace back to you.

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  59. Got the e-book, Ellie. But just as soon as I land my first big piece of business (fingers and toes crossed as they are deliberating now), I'm going for the coffee table book.

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  60. Downloaded e-book v. early this morning NY time. Made coffee. Read. Read. Read. I am in awe. And sorry that our paths didn't cross when you lived up the street, however briefly.

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  61. Congratulations on your book! The cover is perfect. Ordered the e book and hard cover. I will proudly display it, with the most perfect cover I might add and be reminded of so many things I have learned from you. Bon courage

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  62. I had to go for the download option as I don't have the patience to wait for a hard copy! Hard enough to wait for the download to complete. Looking forward to reading! I have no doubt that it's going to be a great read.

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  63. Thank you Ellie.
    Just purchased the hard copy.
    Love you and will see you on the other side xxx

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  64. Your book is coming all the way to South Africa, and cannot wait. Sending you all my positive energy, love, healing, grace with lots and lots of sun. Helena Botha xxxxx

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  65. Bon courage and much love and light. Ellie! Always prayers for David and Grace.
    Love, Karen

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  66. Can't decide which version I want. E-version because I can hardly wait to read it. Or, coffee table book as a beautiful and tangible remembrance of you, sweet Ellie.

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  67. Ellie, I don't know how I found you but it has been a blessing! I have looked forward to your new blogs with a feeling of anticipation/hesitation. . .what next is Ellie going to be facing. . .all of us. . . such is life. Love your title and your book has been ordered. My best to you and yours, Merle

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  68. Done. I downloaded the book and will start reading it today. Warm hugs, Victoria

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  69. Hi Ellie, Downloaded the ebook, finished it and haven't even paid for it yet! You are an amazing woman and the hugest fighter against disease that I know. When I obsess about a little ache or pain I think of you and immediately my obsession goes away. May you have lots of sunshine, peace and love in the days ahead. You are very, very special in the world. Thank you for sharing your life with us.

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  70. Ellie I couldn't wait for a "real" copy so I ordered the ebook. I echo the earlier comments about how to print your blog posts so we can keep more of you with us. I, like many, am so greedy for your ying and yang, your bite" and your inspirational words. Thank you for blogging these past years and for your books. Wishing you my best, C.

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  71. Our Lord says, "When you pass through the waters, I will be with you." Notice He doesn't say "when you're IN the waters" or "when the waters are AROUND or NEAR you". He says THROUGH. That's what you've been doing, Ellie, and He has been there with you. No one has been THROUGH anything with more grace than you've shown. I pray God's richest blessings on all of you.

    Hattee Christian

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  72. Just finished the book! So many wonderful stories. What a rich, well-lived life you have led. You have packed more into 40(ish) years than most people would in several lifetimes. This is an old Irish (Celtic?) prayer adapted from a longer poem that I have always loved. I wish this for you.

    Deep Peace to You
    Deep peace of the running wave to you.
    Deep peace of the flowing air to you.
    Deep peace of the quiet earth to you.
    Deep peace of the shining stars to you.
    Deep peace of the infinite peace to you.

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  73. Can't wait to get the book. Love you Ellie Wish I were there to give you and your family and caregivers a big hug. Peace, my friend. Linda

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  74. Ellie dear,
    I love this...the idea of people who are your followers having meet up. I woke up to another email from one of your followers...she's here in LA also. (to join us email me candace.culp@gmail.com)
    I think we should meet somewhere wonderful, maybe the Beverly Wilshire.
    I hate that you will be too far away to join us. We will keep a chair for you and a glass of champagne ...just in case.
    Blessings for you and David and Gracie...my heart is with them.
    With all love,
    Candace

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  75. Dearest Ellie,

    I just read your book!!! Got it within seconds on iBook and I was hooked. It was wonderfully written! I was hooked and had to order pizza for dinner for my kids because I couldn't stop reading ... My youngest kept on asking what I was doing and saw your picture with Gracie towards the end of the book ... He says you are beautiful by the way. Stunning I say!!!
    I will cherish your words and believe me I will keep that promise .. If I run into Gracie I will hug her and tell her "it's from your mom "... I needed tissues ... I couldn't handle it at the end .

    Much love to you Ellie!!! That David of yours is a saint!
    All my love to Gracie

    Samantha ( yup your German girl in the alps)

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    1. I loved the picture of Ellie and Gracie on page 177. Such beauties.

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  76. Ellie, I loved the book. It was very conversational. My favorite: wondering how you got ALS, and the adorable, touching notes to your daughter. You have done so much with so many obstacles.

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  77. So impressed with your book. Bon courage and prayers with love for you and your family, especially Grace. xo

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  78. I too had no patience to await receipt of a hard copy. Read your book in an afternoon. I guess my takeaway is that money can't buy you happiness, health or really much of anything. Relationships are what we live for and leave behind. Worried about what I might read I also purchased your Thanksgiving and Christmas books to hold on to my image of you... the feisty opinionated and witty Ellie... I will go back to those books often. Merci beaucoup, our thoughts are with you.

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    1. Hi Jojo, I want to get the ebook and I am wondering if you can just read it on a computer without an ibook reader or ipad? On the sales form it says it is in ibook format and I am not sure I will be able to read that. thanks!

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    2. Hi Goop Girl. Everything I have read says ibooks can only be read on apple devices. There are no apps or programs to make it readable on a windows computer or an android tablet. I am hoping Ellie might be able to offer AND SO IT IS in epub format for us without apple devices who are not able to purchase a physical copy of her book.

      We love you Ellie <3 You are in my thoughts daily.

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    3. I'm no computer tech... I read my version on my Mac and it downloaded to my iPad... I can't imagine that the ebook edition is only for Apple products... You've likely solved this already, I hope so, jo

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  79. I just finished your book. You have a wonderful way with words. It is a good read. I'm glad that you have friends and family that you can count on. Sending lots of love to you, Gracie and David.

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  80. I am late to the party as I have been reading all of the comments. You really have created an amazing community here, beautiful one.

    There is nothing I can add that hasn't already been said. But I can not wait to finally read your story. I am so grateful that you finished it and are sharing it with the world...
    Love you so much, now and always,
    H bis

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  81. Congratulations on your book, Ellie! Only you could write an autobiography in the midst of coping with ALS. I ordered the hard copy and am looking forward to reading it with Kleenex and a cocktail. Thereafter, you'll be next to Valentino on my bookshelf.

    XOXO / Nancy

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  82. Go big or go home! Coffee table version ordered.
    Sending Love from Pittsburgh,
    Robbi

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  83. I'm a new reader-found your blog from the Preppy Empty Nester. This past week I've been consumed with reading your blog and today ordered your coffee table book. I love your wit and humor and am saddened to think of a world without you in it. I look forward to reading your book and say a prayer for you, David, and Gracie.

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  84. I finished your book today, (wept and laughed and wept and laughed...my husband thinks I am a lunatic, but there's nothing new there) and I wanted to share this poem with you. I'm not a scientist, but I hear there is a theory that says that time is not linear, but that the past, present and future are really all the same, and this poem reflects that idea for me. This is one of my favorites, and I discovered it on the subway, of all places.

    HEAVEN
    Patrick Philips b 1970

    It will be the past
    and we'll live there together

    Not as it was to live
    but as it is remembered.

    It will be the past.
    We'll all go back together.

    Everyone we ever loved,
    and lost, and must remember.

    It will be the past.
    And it will last forever.


    I honestly believe that you and your Gracie are linked for eternity. She will always have you and you will ALWAYS have her.

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    1. I, too, saw that poem in the subway and it affected me greatly as well. I then ordered all of Phillips's poetry books. He is very talented. So is Ellie whom we all love so much.

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  85. Finished your book last night. I loved every second of it. Thank you for sharing your life. Blessings and peace to you, David,and Grace. You will be missed by many. Thankfully your soul lives forever and ever and one day you will be reunited with all those you love. Until then you can watch over them and be their guardian angels.
    Xoxo
    Alison

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  86. In the middle of the night, while everyone else in the house slept, I finished your book. True to form (as whenever I read your blog lately), I cried a little and laughed a lot, even startling the dogs out of sleep as they snoozed in a corner of my bedroom. As I always do when I finish a book, I added it to my list. "And So It Is" is #24 on "Books Read in 2016." Only this time, I realized this morning, I didn't add the author's full name after the title. I just wrote "Ellie" -- as if I knew the author personally, as if she were one of my close friends. Isn't that funny? You have such a gift for making readers feel as if they know you, and it's because you are so open and unguarded in sharing your life and your thoughts. Thank you again for that -- thank you for your lovely book -- and peace be with you and Grace and David ...

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  87. Just ordered the book (and the other two as well). Thank you for sharing so much of yourself with us. I wish you peace and love from San Francisco! Xx Joan

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  88. I haven't gotten your book yet, but would you want a large publisher to pick it up? It sounds like people are crazy about it, and it could then reach a larger audience. Maybe you're bound by a contract? Or can you jump at any time when you self-publish?
    Sheila in Port Townsend

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  89. CONGRATULATIONS! I cannot wait to read. I refuse to believe we won't be communicating many more times, so on a lighter note today, I thought of you staying in your mother in law's home when I read Oscar Wilde's last words. " The wallpaper and I are fighting a dual to the death. One or the other of us has to go." XOXO Nancy in Texas

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  90. Loved your book and love your attitude. Thank you giving us a glimpse into your life and thoughts. I learned so much about what I think is important and what IS important. Your words about Gracie tug at my heart. I know that Gracie will always feel your love and she will never forget what an incredible mom, person, friend that you are. And so it is.....

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  91. First I have to say as a rule I am usually a "liker" not a comment leaver. However your book moved me and I just have to say thank you for sharing your story. You are truly inspirational. Your story made me both laugh out loud and cry at the same time. You are an amazing woman, mom, writer. Thank you again you have truly touched my soul. XOXO

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  92. Congratulations on the completion of your new book! I can't wait to read it. You're an amazing writer. Sending you love and prayers from North Carolina.

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  93. Hi Ellie, Well I just finished reading your book! I read it slowly; didn't want it to end. It's a lovely book, a great tribute and another important legacy. I agree with the commenter who talked about getting it published in a big way. I think it's important if that were to happen that ''strangers'' get to know you through your blog before reading the book.

    I'm having two big reactions to your book....one is ''drained'' emotionally. I'm feeling the winding down and I don't want to. And there are so many parts that hit home with me when you talk about your relationships. And the sadness for Gracie; you've been a stellar, genius Mother and your strength will pass to her in time. Meanwhile she will be surrounded with love and your's from Heaven too. I suspect you're just too willful for your ''messages'' to her not to get through!!

    The second big reaction is your book has just whet my appetite for more, more, more. I want more info, more books, more thoughts, more detail and the stuff left out! If your health weren't in it's current state I'd ask you to consider a second book.

    Job well done Ellie. You are in my thoughts and prayers every day. B xxoo

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  94. Just finished your book and I haven't even received my big assed, coffee table version yet! I decided I needed to read the e-version. "Thank you" doesn't seem sufficient. "Good book" doesn't really convey what I feel. How about "you did it!" You really did it. You managed to keep on living every second after that crazy diagnosis. You managed to keep on loving the most important people in your life. You managed to drop the people who were not worth your investment. You managed to continue a blog and write books and eat good food and go to flea markets and watch all the episodes of all the Real Housewives. You lived it! You did it!
    Love, love, love
    Robbi from Pittsburgh

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  95. So happy you birthed the book! What a gift to the world and to your Gracie...whether she knows it now or not at the moment. I can't imagine how challenging this was with ALS...it's hard enough to do with out ALS!
    Love you girl and you have been an incredible influence on my life as well as many others! xoxoxo

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  96. Congratulations on your book Ellie -- so exciting!!!
    XOXO
    Sabrina in Port Townsend

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  97. Dear Ellie - Last Thursday afternoon was spent immersed w "And So It Is" - Friday, Saturday, and well into Sunday - diving back into HSD archives. One by one rereading the treasure trove of (borrowing Stephen Andrew's brilliant new word) "Elliessons", I was again bowled over by your creativity, thoughtfulness, and the depth and diversity of the topics you've shared over the years. And I could kick myself for failing to comment earlier and often - to express my gratitude/awe for your careful research, engaging writing, beautiful photos, and of course, your unique style and decorum. You deftly - defiantly - embraced life's highs w a scattering of its lows - all playing out w ALS on the side. On occasions your candor has discomforted - but if some residue of "youthful brattiness" (see Chapter 6 The Malibu Years) - has heroically compelled you to live every minute to the fullest - then what blessings that adventuresome grit has forged. The body of work you have so generously sent out into the world is a tour de force! Bravo! Dorothy

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  98. Ellie, Congrats to you. How you ever did this with all you deal with I do not know. Cannot wait to read it. Sending hugs. xo Kim

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  99. Beautifully written, your heart shows through each word. Peace and forgiveness to those who cannot face the future with you. Love to those who will. You are a warrior Ellie!

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  100. Ellie - haven't read it yet but can't wait. I am inspired by your determination to finally start writing my blog. If you can write a BOOK and the blog with ALS, I have no excuse. Thinking of you. Thinking of your family and your amazing faithful husband and daughter. Love from New Mexico. you are an inspiration.

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  101. Ellie - I have read your blog for a long time and never commented before... but from my heart I want you to know that you have made a difference, you are making a difference, and you will continue to make a difference. And that is a life well lived. A previous commenter suggested you write to Gracie and I second that opinion. I have left letters, notes, thoughts for my son in different places that he will look in only after I have gone. Just in case. Even if I pass on with things unsaid, I don't want there to be things unsaid. So I've said them. 'Cause I'm the momma! You are precious in your humanity and in your vulnerability and in your raw courage. One breath at a time. You are loved and I am glad you have been in my life, even from a distance. You will live on in a bookcase in my family room in Santa Rosa, CA! Peace to you and yours. Nancy from Santa Rosa, CA

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  102. I read it and loved it, Ellie.
    You have managed to inspire us and make us laugh again and again via your blog.
    You have taught us how to live and how to face the end.
    Quite incredible.

    I am grateful and send love and prayers,
    Betsy

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  103. Ellie,

    I just finished your book, downloaded it yesterday and every time I had to put it down all I could think was "I need to get back to Ellie". Thank you, thank you, thank you for loving us all so much to publish this beautiful legacy. If you touched but one life, you have touched the world.
    My love is with you. I promise, every Gracie I meet I will give a huge hug and tell her it is from her Mama, on the off chance I meet this lucky girl. Lucky to have a Mama like you. Fuck ALS. �� There. I said it. (I too was raised to be proper. ) Until we meet again.
    Jean

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  104. Halfway through your wonderful book. You are an amazing and beautiful soul. I love your sence of style and sence of humor!!

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  105. I will read your book but not as I'm walking through this same battle with my mother. Thank you for writing this for your daughter and the other children of ALS. I fucking hate this disease but know that your body with be free again.

    πŸ’—

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  106. Thank you so much for sharing your world with us. I have always loved reading your
    blog. I think you are absolutely beautiful. Love and Strength to you and your wonderful
    family. Thank you, Marie

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  107. Received and read your book this evening; it is both wonderful and heartbreaking. I am so glad you have had such great love in your life, and I am certain that those you love are better for it. Thank you; hugs to you from NYC.

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  108. Dearest Ellie - spent my entire Friday night reading your book... Amazing is all I can say.. Thank you for making me appreciate life even more... You are thought of often and hope your days ahead are peaceful... oxoxox Big hug girlfriend.... hugs from NYC... the next time I walk Central Park - I will think of you - always...

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  109. Ellie not sure if you realize this or of it is an oversight on Blurb's part but their page for you doesn't include your eBook just the four other versions. The only link I am finding is directly from this article. I already have my eBook but I was attempting to get one for my technologically incompetent mother on her device and clicked the sidebar to find for purchase And So It Is which took me to a hardcover option, clicked your name on that page which took me to four other but no eBook so I finally went back to this article and found the link! This isn't a complaint from a lazy person ( I prefer nonprofessional sloth impersonator ) but instead one who wants you to get as much profit as possible!

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